Cerebral Palsy, COVID-19, Disabilities Multiple, Muscular Dystrophies
Conditions
Keywords
cerebral palsy, COVID-19, pandemic, disability
Brief summary
Pandemic period could affect the disabled children's rehabilitation and follow-up negatively because of preventive measures and this could create adverse results on their parents. In this research, it is aimed to determine the positive and negative effects of pandemic on parents and disabled children and to provide an insight for future solutions.
Detailed description
To determine the effect of COVID-19 pandemic and the possible difficulties experienced by the parents of disabled children, a questionnaire was prepared. It takes approximately 10-15 minutes to complete the survey. Questionnaire is loaded to qualtrics program and sent to the families by e-mail or social media accounts.
Interventions
OTHERDifficulties lived by disabled children's parents in the period of COVID-19 pandemic
It will be a cross sectional study to obtain the information on difficulties lived by disabled children's parents during recent pandemic period
Sponsors
Gaziosmanpasa Research and Education Hospital
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
SCREENING
Masking
NONE
Masking description
No masking will be done
Intervention model description
One study group will be researched- only disabled children's parents, in one arm -way
Eligibility
Sex/Gender
ALL
Age
18 Years to 65 Years
Healthy volunteers
Yes
Inclusion criteria
* Having disabled child/children * Having ability and facility to use internet * Having ability to read and write * Having enough cognitive capacity to answer the questionnaire * To accept to participate the research
Exclusion criteria
* Not having disabled child/children * Not having ability and facility to use internet * Not having ability to read and write * Not having enough cognitive capacity to answer the questionnaire * Not to accept to participate the research
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| A questionnaire that we created will be used to determine the difficulties experienced by disabled children's parents during Covid 19 pandemic related to their medical follow-up | 4 weeks | Difficulties related to rehabilitation facilities, other medical conditions or ortosis could increase because of Covid 19 pandemic unique conditions |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| The Fear of COVID-19 Scale | 4 weeks | The Fear of COVID-19 Scale, a seven-item scale, has robust psychometric properties. It is reliable and valid in assessing fear of COVID-19 among the general population and will also be useful in allaying COVID-19 fears among individuals. Score is minimum 7 pointts and maximum 35 points. |
Countries
Turkey (Türkiye)
Outcome results
None listed