Parkinson Disease
Conditions
Keywords
Parkinson's Disease
Brief summary
The purpose of this Parkinson's Disease Registry is to assist with recruitment of willing participants into future Parkinson's disease research studies at the University of Delaware.
Detailed description
There is an urgent need for Parkinson's Disease research due to its increasing global prevalence. Participant recruitment is a significant challenge to the success of Parkinson's disease research and we need your help more than ever in moving the field forward and improving the lives of people who have Parkinson's disease. Recruitment of study participants can be facilitated by maintaining registries of people who agree to be contacted for future studies. The purpose of the University of Delaware Participant Recruitment Registry for Parkinson's Disease Research is to create a registry that includes the contact information and basic health information pertaining the participant's diagnosis of Parkinson's disease. The registry will streamline recruitment and enrollment in a variety of research studies focusing on topics such as, but not limited to: brain changes in Parkinson's disease, balance and gait in Parkinson's disease, exercise and its effect on motor function. To be in the registry individuals must have a clinical diagnosis of Parkinson's Disease and have an interest in participating in research studies. To become a member of this registry, primary information including contact information and some general medical information are needed.
Interventions
None listed
Sponsors
University of Delaware
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
21 Years to 100 Years
Healthy volunteers
No
Inclusion criteria
* Individual 21 years old or older * A clinical diagnosis of Parkinson's disease * Interest in participating in one or more investigator-led research studies at the University of Delaware
Exclusion criteria
* Individuals with a clinical diagnosis of parkinsonism that is not considered primary (e.g. vascular parkinsonism) or an atypical parkinsonian syndrome (e.g., progressive supranuclear palsy, multiple system atrophy, corticobasal degeneration etc.) * Clinical diagnosis of dementia
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Parkinson's Disease Diagnosis | Once a year, at the beginning of the year | By following up once a year, we will evaluate a participant's medical history to validate a diagnosis of Parkinson's Disease. A confirmed diagnosis of Parkinson's Disease is a criteria for continuing to be a part of the registry. |
Countries
United States
Contacts
Primary ContactRoxana Burciu, PhD
Outcome results
None listed