Cystic Fibrosis
Conditions
Brief summary
Adult patients with Cystic Fibrosis who are seen at the specialty CF clinic at University of Virginia will be given an option to utilize telemedicine instead of in-person visits for standard clinic visits. Health information from standard of care visits including FEV1, exacerbations, leading to oral or intravenous antibiotics, laboratory results, hospitalization records, and responses to health questionnaires will be recorded for research purposes. Data collected for the research study will be compared to baseline and previous years to determine if there are any deleterious effects for those who transition to telemedicine clinic visits.
Interventions
None listed
Sponsors
University of Virginia
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to 90 Years
Inclusion criteria
* Adult patients (18-year-old and older) with CF seen in the UVA adult CF clinic who agree to participate in the study.
Exclusion criteria
* Patients who cannot consent to the research study. In addition, prisoners will not be included.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| FEV1 stability | 12 months | A change of 10% or more in FEV1 percent predicted will be considered significant; FEV1 pre and pos covid telemedicine implementation will be compared |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Exacerbation rate | 12 months | Exacerbation rate pre and pos covid telemedicine implementation will be compared |
Countries
United States
Outcome results
None listed