Advance Care Planning, Advance Medical Directives, Ethnic Minorities, Living Will, Moroccans, Muslims
Conditions
Brief summary
Advance care planning (ACP) enables individuals to define goals and preferences for future medical treatment and care, to discuss these goals and preferences with family and health-care providers, and to record and review these preferences if appropriate. Research has shown that most Western patients express the need about what ACP entails. Ethnicity creates an important cultural impact on how people look at life and death, so that there is an influence on making decisions about end-of-life care. The moroccan ethnic group is one of the largest visible non-Western minority groups in Western countries. Studies on how ACP is perceived among patients from moroccon origin are lacking. The objective of this study is exploring the knowledge, experiences, point of views, preferences, attitudes, facilitators and barriers concerning advance care planning of older people from moroccan origin in Belgium. Semi-structured interviews (in the native moroccan/arabic language) will be used.
Interventions
one to one interviews with older people from moroccon origin in Belgium
Sponsors
Study design
Intervention model description
one to one interviews
Eligibility
Inclusion criteria
* People with Moroccan origin who live in Belgium and are older than 65 years and who have also given informed consent to participate in this qualitative interview study
Exclusion criteria
* Patients who are terminal ill which means having a life-limiting disease with irreversible decline and who are actively dying (actively dying is related to patients with days of survival). (41) * people who have cognitive impairment
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Knowledge, experiences, views, preferences, barriers and facilitators about advance care planning from older people from moroccon origin in Belgium | 18 months | This is a qualitative study. We've developed a semi-structured interview guide with the folowing questions: What do you know in relation to advance care planning? Have you yourself ever thought or looked up about your future healthcare? What do you think about advance care planning now for future? What are the advantages and disadvantages? In your opinion, what makes it easier or harder to talk about advance care planning? |
Countries
Belgium