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Understanding Family Refusal

Exploring Family vs. Individual Decision-making in Organ Donation

Status
Completed
Phases
Unknown
Study type
Observational
Source
ClinicalTrials.gov
Registry ID
NCT04303624
Enrollment
1007
Registered
2020-03-11
Start date
2016-09-01
Completion date
2019-03-31
Last updated
2020-03-11

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Brain Death, Renal Failure

Keywords

Organ donation, Transplantation, Intensive care

Brief summary

The investigators plan a secondary data analysis of an existing dataset to examine how individual decision-making differs from family decision-making in organ donation.

Interventions

OTHERHealth sciences survey

Large scale demographic survey evaluating attitudes of population towards organ donation for the self vs. family

Sponsors

Singapore General Hospital
CollaboratorOTHER
Yale-NUS College
Lead SponsorOTHER

Study design

Observational model
COHORT
Time perspective
CROSS_SECTIONAL

Eligibility

Sex/Gender
FEMALE
Age
21 Years to No maximum
Healthy volunteers
Yes

Inclusion criteria

* Citizens or permanent residents of Singapore * Above 21

Exclusion criteria

\- Below 21

Design outcomes

Primary

MeasureTime frameDescription
Willingness to donateSingle measurement (time of taking the survey)Participants indicated their willingness to donate their own organs and those of a close family member

Secondary

MeasureTime frameDescription
Confidence in family decision-makingSingle measurement (time of taking the survey)Participants rated how confident they were that - upon their family member's death - they would respect their family member's views regarding donation rated using 5-point scales anchored on one end with 1=Not confident at all and 5=Absolutely confident).

Outcome results

None listed

Source: ClinicalTrials.gov · Data processed: Feb 4, 2026