Autism Spectrum Disorder
Conditions
Keywords
Care pathway, Health administrative database
Brief summary
Autism Spectrum Disorder (ASD) is lifelong neurodevelopmental disorder that affect social communication and interaction and includes limited and repetitive patterns of behavior (DSM 5). In France, national guidelines about practices recommends early and specific interventions but care pathway are not well described for ASD children. The national health insurance information system record demographic data, medical condition, and reimbursed drug over 98% of the French population. In addition, the ELENA cohort is a large cohort of children with ASD followed for 6 years. Data collected include clinical characteristics of children (IQ, severity of ASD...) and parents (educational level, professional status...). The first objective of this project is to identify patterns of care trajectories using data from ELENA cohort matched to data from national health insurance information system. Secondary objectives are to examine the links between patterns of care trajectories and clinical characteristics, social environment of autistic children.
Interventions
None listed
Sponsors
University Hospital, Montpellier
Study design
Observational model
COHORT
Time perspective
RETROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
2 Years to No maximum
Healthy volunteers
No
Inclusion criteria
\- Included in ELENA Cohort
Exclusion criteria
\- Opposable to reuse data
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Care pathway | 1 day | Care pathway will be built from administrative database from birth to 2019 |
| Clinical characteristics | 1 day | Clinical, social and environmental data of children from ELENA cohort |
Countries
France
Contacts
Primary ContactAmaria Baghdadli, Professor
Outcome results
None listed