Pediatric Patient Transfer to Adult Service:Transition Program
Conditions
Brief summary
Transend is a program designed to promote the transition of young patients with endocrine or metabolic diseases when they arrive in the adult sector at La Pitié-Salpétrière hospital. The main objective of the study is to compare the rate of patients lost to follow-up at 24 months after the transfer of pediatrics between the Transend group and the (historical) control group.
Detailed description
Adolescence and early adulthood represent important periods for young people suffering from chronic diseases. Several observational studies show needs not covered by care services at this period and significant lost to follow-up rates. Transend is a program designed to promote the transition of young patients with endocrine or metabolic diseases when they arrive in the adult sector at La Pitié-Salpétrière hospital (Paris, France). Since September 1, 2016, approximately 500 patients benefited from it.
Interventions
BEHAVIORALsurvey
Behavioral study of patients who are in the Transend Program (compliance in follow-up visits after transfert from pediatric to adult care in the 24 months)
Sponsors
Assistance Publique - Hôpitaux de Paris
Study design
Observational model
CASE_CONTROL
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to 32 Years
Healthy volunteers
No
Inclusion criteria
* Patient aged 18 to 32 * Patient with endocrine or metabolic disease * Patient who had a follow-up in a pediatric department for his endocrine or metabolic disease * Patient transferred to the adult sector in the endocrinology, metabolism or nutrition department of Pitié-Salpêtrière * Patient who had a first post-transfer consultation between January 1, 2015 and September 1, 2017 * Patient with a social security protection
Exclusion criteria
* Patient who transferred to another adult service before being followed at Pitié-Salpêtrière * Patient who has expressed his opposition to participate in this research
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Rate of patients lost to follow-up at 24 months post transfert | 24 months post transfert | Defined by pathology as patients who have not been seen in a medical consultation since a time superior of the recommendation for his state of Heath at 24 months post-transfer and for whom no elements confirm a next consultation in the center nor a follow-up in another center |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Relationship of trust between caregiver and patient | 24 to 36 months post transfert | Score calculated by wake Forest scaleis a validated scale of 10 items for the evaluation of the different components of trust.including 3 items on loyalty, 3 items on competence, 1 item on honesty and 3 items on global trust. (short version) resulting from an evaluation anonymously made by patients |
| Time to first consultation in adult medicine | 24 to 36 months post transfert | Experimental group: patients transferred to adult service according to the Transend transition program (between September 2016 and January 2018) Control group: patients transferred to adult service without a transition program, in the same center, before the implementation of Traansend (between January 2015 and September 2016) |
| Patient satisfaction | 24 to 36 months post transfet | Satisfaction collected on a scale of 0 to 10 where 0 means the worst transfer imaginable resulting an anonymous assessment carried out by the Patients |
| Number of consultations not honored by the patient | 24 to 36 months post transfert | Experimental group: patients transferred to adult service according to the Transend transition program (between September 2016 and January 2018) Control group: patients transferred to adult service without a transition program, in the same center, before the implementation of Traansend (between January 2015 and September 2016) |
| Compare the experience of the transition betmeen the two Groups | 24 to 36 months post transfret | Frequency of feeling broken, continuity, need to contact the paediatrician, attention and perceived availability on the part of professionals on arrival in the adult hospital |
| Assess Transend's efficiency | 24 to 36 months post transfret | Cost/incremental cost-effectiveness ratio in cost gained and cost per loss of view |
| Avoided care consumption and associated costs | 24 to 36 months post transfret | Costs associated with hospital emergency room visits, home visit of SOS doctor, unplanned hospitalization |
Countries
France
Outcome results
None listed