Chronic Obstructive Pulmonary Disease, Neuromuscular Diseases, Respiratory Failure, Ventilatory Failure
Conditions
Brief summary
To determine the quality of life of patients living with chronic respiratory failure and the impact interventions have on it.
Detailed description
To determine the quality of life of patients living with chronic respiratory failure and the impact interventions have on it.
Interventions
OTHERQuestionnaire
HRQoL questionnaires
Sponsors
Guy's and St Thomas' NHS Foundation Trust
Study design
Observational model
COHORT
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
Diagnosed with chronic respiratory failure receiving any of: * Non-invasive ventilation * Prolonged mechanical ventilation * Mechanical insufflation-exsufflation therapy
Exclusion criteria
* Aged \<18 * Significant physical or psychiatric co-morbidity that would prevent compliance with trial protocol
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| HRQoL score | Day 0: At the first outpatient clinical consultation with the clinical team | Outcome of various HRQoL assessment tools. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Change in HRQoL score | 6 months following first assessment for Outcome 1 | Change in HRQoL assessment tool score at next clinical follow-up. |
Countries
United Kingdom
Contacts
CONTACTNeeraj Shah, MBBS
CONTACTPatrick Murphy, MBBS
STUDY_CHAIRPatrick Murphy, MBBS
Guy's and St Thomas' NHS Foundation Trust
Outcome results
None listed