Hemodialysis, Peritoneal Dialysis
Conditions
Keywords
hemodialysis, peritoneal dialysis
Brief summary
This study is exploring symptom burden, health experiences and expectations of treatment and survival of seriously ill dialysis patients and their physicians.
Detailed description
Sharing and communicating information with patients is an integral part of medical care, yet research has shown that disparities exist between physicians and patient perceptions of illness severity. In renal medicine, along with many other specialties, expected prognosis can affect treatment offered.Thus appreciating and understanding one's prognosis can influence patients and relatives' expectations for treatment and guide discussions regarding quality of life. Previous work has highlighted disparities in the United States between expectations of survival of seriously ill haemodialysis patients and their physicians. The investigators plan to repeat this study within the United Kingdom, to see whether similar issues occur and to elucidate current practice on discussions of prognosis, symptom burden and transplant candidacy. The investigators hope to identify where care can be improved and to enable patients to better make informed decisions on treatment and goals of care. Part one of the study is to repeat this study in haemodialysis patients in the United Kingdom. This has been completed and published (2021) at https://www.kireports.org/article/S2468-0249(21)00103-0/fulltext. Part two of the study is to extend the study to peritoneal dialysis patients in the United Kingdom.
Interventions
OTHERQuestionnaire/Structured Interview
No intervention
Sponsors
Imperial College London
Study design
Observational model
COHORT
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Age
18 Years to 100 Years
Healthy volunteers
No
Inclusion criteria
* Haemodialysis patients 18-100 years old, with a predicted mortality risk of \>20% in the next year, their close person and staff members (nurse and doctor) caring for the patient. * Peritoneal dialysis patients 18-100 years old, with a predicted mortality risk of \>20% in the next year, their close person and staff members (nurse and doctor) caring for the patient.
Exclusion criteria
* Patients on home haemodialysis
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Current practice regarding discussion of prognosis with seriously ill dialysis patients, to better understand the dissonance between physician and patient beliefs on prognosis, transplant candidacy and goals of care. | Through study completion, an average of 2 years | Completion of questionnaire or structured interview |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Number of dialysis patients who are more optimistic about prognosis and transplant candidacy than their nephrologists | Through study completion, an average of 2 years | Completion of questionnaire or structured interview |
| Patients' prognostic expectations are associated with their treatment preferences | Through study completion, an average of 2 years | Completion of questionnaire or structured interview |
| Number of patients with dialysis associated symptoms as assessed by IPOS Renal (https://pos-pal.org/maix/ipos-renal-in-english.php). | 7 days | Completion of questionnaire or structured interview |
Countries
United Kingdom
Contacts
Primary ContactHannah Beckwith, MBChB
Outcome results
None listed