Juvenile Idiopathic Arthritis
Conditions
Brief summary
It is widely acknowledged that the transition from paediatric to adult health services should be a multidimensional and multidisciplinary process that addresses the medical, psychosocial, and educational needs of adolescents and young adults (AYA). Despite this, there is currently a scarcity of research examining the relationships between psychosocial factors (e.g., anxiety, social support) and transition readiness in AYA with juvenile idiopathic arthritis (JIA). This study therefore aimed to examine the relationships between psychosocial factors and transition readiness in pre-transfer adolescents and post-transfer young adults aged 10-25 years diagnosed with JIA at a single centre. In total, 40 adolescents aged 10-16 years together with a parent/guardian, will take part at Sheffield Children's Hospital and 40 young adults aged 16-25 years will take part at Sheffield Teaching Hospitals. Participants will be asked to complete a battery of self-report questionnaire measuring psychosocial factors (anxiety/depression, social support, family functioning, health-related quality of life) and transition readiness (transition knowledge and skills, self-efficacy). JIA disease severity was also measured during clinic appointments. This study has received full ethical approval, and all participants will give their written informed assent or consent before taking part. The results from this research will be important in better understanding which psychosocial factors affect how ready young people with JIA feel to move from paediatric to adult rheumatology services. We hope this research will inform further work to help target psychological interventions in this group of patients.
Interventions
None listed
Sponsors
Sheffield Teaching Hospitals NHS Foundation Trust
Sheffield Children's NHS Foundation Trust
Study design
Observational model
COHORT
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Age
10 Years to 25 Years
Healthy volunteers
No
Inclusion criteria
Patient Inclusion Criteria: * Aged 10-25 years * Diagnosis of juvenile idiopathic arthritis (including all ILAR subtypes except 'systemic arthritis' and 'undifferentiated arthritis') * Juvenile idiopathic arthritis managed by Sheffield Children's Hospital or Sheffield Teaching Hospitals * Fluent in verbal and written English Patient
Exclusion criteria
* Aged \<10 years or \>25 years * Diagnosis of juvenile idiopathic arthritis ILAR subtypes 'systemic arthritis' or 'undifferentiated arthritis') * Diagnosis of uveitis * Non-fluent in verbal and written English
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Generalised Anxiety | 1 day | Generalised Anxiety Disorder-7 Questionnaire (Spitzer et al., 2006) |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Depression | 1 day | Patient Health Questionnaire-9 Questionnaire (Spitzer et al., 1999) |
| Health-related quality of life | 1 day | Paediatric Quality of Life Arthritis Module (Varni et al., 2002) |
| Social support | 1 day | Bath Adolescent Pain Questionnaire Social Support Subscale (Eccleston et al., 2005) |
| Prosocial and problem behaviours | 1 day | Strengths and Difficulties Questionnaire (Goodman, 1997) |
| JIA disease severity (JADAS-3) | 1 day | JADAS-3 is a composite score of patient VAS score, physician VAS score, active joint count |
| Family functioning | 1 day | Bath Adolescent Pain Questionnaire Family Functioning Subscale (Eccleston et al., 2005) |
Countries
United Kingdom
Outcome results
None listed