Haemophilia
Conditions
Brief summary
this study evaluates the effects of therapeutic exercises on kinesiophobia and health-related quality of life in adult haemophilia patients. half of participants will receive therapeutic exercises and verbal information about the positive effects of therapeutic exercises on physical pathologies due to hemophilic arthropathy while the other half will receive only verbal information.
Detailed description
in haemophilia patients recurrent musculoskeletal hemorrhage cause to arthropathy characterized by severe degeneration of joint cartilage and bones. arthropathy leads to decrease in the patient's health related quality of life. furthermore pain, risk of injury and lack of motivation lead to decreased physical activity and development of kinesiophobia.
Interventions
OTHERtherapeutic exercises
aerobic- balance -stretching and strengthening exercises
Sponsors
Volkan Deniz, PT
Study design
Allocation
RANDOMIZED
Intervention model
PARALLEL
Primary purpose
TREATMENT
Masking
SINGLE (Subject)
Eligibility
Sex/Gender
ALL
Age
18 Years to 60 Years
Healthy volunteers
No
Inclusion criteria
* Individuals older than 18 years * diagnosed with hemophilia A or B * having at least one joint with hemophilic arthropathy * without cognitive problems * speaking turkish
Exclusion criteria
* Individuals with another congenital coagulopathy such as Von Willebrand Syndrome, * unable to walk due to hemophilic arthropathy * developing inhibition against factor VIII-IX
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| tampa kinesiophobia scale | baseline, 8 weeks: change from baseline kinesiophobia at 8 weeks, 6 months: change from baseline kinesiophobia at 6 months | This is a questionnaire consisting of a total of 17 questions evaluating fears related to pain or previous injury. participants can receive a maximum of 68 and minimum of 17 points in this questionnaire. there is a negative correlation between the score and kinesiophobia. |
| haemophilia adult health-related quality of life scale | baseline, 8 weeks: change from baseline health-related quality of life at 8 weeks, 6 months: change from baseline health-related quality of life at 6 months | this questionnaire evaluates health-related quality of life in adult haemophilic individuals and consisting of ten sections -46 questions. participants can receive a maximum of 100 and a minimum of 0 points in this questionnaire. there is a negative correlation between the score and quality of life. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| short form-36 | baseline, 8 weeks: change from baseline health-related quality of life at 8 weeks, 6 months: change from baseline health-related quality of life at 6 months | short form-36 is a quality of life questionnaire consisting of 8 sections and 36 questions. participants can receive a maximum of 100 and a minimum of 0 points in this questionnaire. there is a positive correlation between the score and quality of life. |
Countries
Turkey (Türkiye)
Outcome results
None listed