Caregiver Burnout
Conditions
Brief summary
The goal of this project is to implement and evaluate a novel intervention for low-income families to reduce the burden of caregivers of a child with asthma.
Interventions
BEHAVIORALAsthma Academy
The Asthma Academy is a one hour virtual training that includes providing information about asthma, asthma medications, communicating with healthcare providers and navigating healthcare resources.
BEHAVIORALTelehealth Visit
The telehealth Visit will be conduct by a trained Doctor of Nurse Practice (DNP) student via a scheduled meeting through zoom on the participant's smart phone or computer. The visit will last about one hour wherein participant will be asked about their asthma knowledge and will be given information about asthma.
Sponsors
Josiah Macy, Jr. Foundation
University of Miami
Study design
Allocation
NON_RANDOMIZED
Intervention model
PARALLEL
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
1. Must be age 18 or older 2. Able to speak and read English or Spanish 3. Have a smartphone or computer with active service 4. Care for a child with asthma between ages 5-12 5. Agree to participate
Exclusion criteria
1. Age less than 18 2. Inability to speak and read English or Spanish 3. Does not have a smartphone or computer with active service 4. Child does not have asthma 5. Care for a child less than 5 or greater than 12 6. Decline to participate 7. Prisoners
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Change in Caregiver's asthma knowledge | Baseline, Week 3 | The preliminary effect of the intervention in caregiver's asthma knowledge will be assessed via the Asthma Knowledge Questionnaire. The questionnaire is completed by the caregiver and has 17 items with a total score range of 17-85 with a higher score indicating higher asthma knowledge. |
| Change in Caregiver's sleep | Baseline, Week 3 | The preliminary effect of the intervention in caregiver's sleep will be assessed via the Adult Sickle Cell Quality of Life Measurement (ASCQ-Me) Version 2.0 Sleep Impact - Short Form Questionnaire. The questionnaire is completed by the caregiver and has 5 items with each item having a scoring possibility of 1-5. The total score ranges from 5-25 with a higher score indicating better sleep. |
| Change in Caregiver's anxiety | Baseline, Week 3 | The preliminary effect of the intervention in caregiver's anxiety will be assessed via the Quality of Life in Neurological Disorders (Neuro-QOL ) Anxiety - Short Form Questionnaire. The questionnaire is completed by the caregiver and has 8 items with each item having a scoring possibility of 1-5. The total score ranges from 8-40 with a higher score indicating increased anxiety symptoms. |
| Change in Caregiver's depressive symptoms | Baseline, Week 3 | The preliminary effect of the intervention in caregiver's depressive symptoms will be assessed via the Patient-Reported Outcomes Measurement Information System (PROMIS) Emotional Distress - Depression - Short Form 8a Questionnaire. The questionnaire is completed by the caregiver and has 8 items with each item having a scoring possibility of 1-5. The total score ranges from 8-40 with a higher score indicating increased depressive symptoms. |
| Performance of DNP students conducting the Teleheath Visits | Week 3 | Performance of the DNP students conducting the telehealth visits will be evaluated by the average score rated by a faculty and a peer for each DNP. Each total score is tallied from 5 performance categories with each category having a scoring possibility of 0-3. The total score ranges from 0-15 with the higher score indicating a better performance. |
| Correlation of DNP student performance with family caregiver outcome | Week 3 | The correlation of the performance of the DNP student providing the intervention will be evaluated against the caregiver's asthma knowledge, sleep, anxiety and depressive symptom outcomes. |
Countries
United States
Outcome results
None listed