Type1 Diabetes
Conditions
Keywords
diabetes, clinic letter, clinic summary, post-consultation letter
Brief summary
Patient participation in decision making about their care promotes patient satisfaction and confidence. Further more, allowing patients to see letters written about them enables trust, encourages patients to be involved in decision making process and allow patient understanding. Little is known about how young people value these letters in the same way. Only one brief questionnaire study focused on adolescent views and found that young people wished to receive consultation summaries. This research aims explore the views of adolescent patients related to consultation summaries that they receive following a doctor's appointment. The investigator will use patients attending a specialist diabetes clinic as our cohort and conduct a qualitative study using focus groups.
Detailed description
Patient participation in decision making processes about their care promotes patient satisfaction and confidence. As part of this, allowing patients to see letters written about them enables trust, encourages patients to be involved in decision making process and allow patient understanding. Given this, the 2000 NHS plan made it a requirement that all medical correspondence between health professionals is shared with patients. It is estimated that 40-80% of information discussed during a consultation is forgotten immediately. Written summaries have shown to be an effective method of improving patient recall of information by 20.8%. The literature on the benefits/disadvantages of consultation summaries is largely focused on adult patients with little research done to explore the views of adolescent population. Where the patient is a child, the literature is only focussed on parents of children and not the children themselves. Limited research has shown that parents/care givers report clinic letters being useful in assisting with better understanding and management of their child's condition. Little is known about how young people value these letters in the same way. Only one brief questionnaire study focused on adolescent views and found that young people wished to receive consultation summaries. Adolescence is an important time of an individual's life. This is the time when many independent health behaviours are established. During adolescence, young people start showing more interest in their own health and often wish to participate in decision making processes regarding their care. The role of health workers at this stage is to appreciate young people as individuals . Clinic summaries addressed directly to young people might play an important role in assisting with establishment of health behaviours and promoting good health in young people. The aim of this research is to understand the views of adolescent patients on consultation summaries and identify factors can improve these summaries and subsequently their health and well-being.
Interventions
OTHERInterview-Questionnaire
Questionnaire
Sponsors
Imperial College London
Study design
Observational model
ECOLOGIC_OR_COMMUNITY
Time perspective
RETROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
12 Years to 18 Years
Inclusion criteria
* Adolescents aged 12-18 years attending UCLH adolescent diabetes outpatient clinic
Exclusion criteria
* Young people who cannot speak English (effective communication with colleagues during the study is the major aspect of valid data collection) * Young people who refuse to participate in focus group discussions
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Number of Participants That Completed Interviews About Consultation Summaries They Were Receiving | 1 month | The aim of this research is to understand the views of adolescent patients on consultation summaries and identify factors can improve these summaries and subsequently their health and well-being. |
Countries
United Kingdom
Participant flow
Participants by arm
| Arm | Count |
|---|---|
| Semi-Structured Interview This is a qualitative study using semi-structured interviews with young people aged 12-18 who are receiving consultation summaries.
Patients attending a single diabetes service will be invited to enrol. This service serves a population from a wide geographic area and socio-economic backgrounds.
Interviews will be conducted by a qualitative researcher with relevant experience. They will be held on the day of a participant's clinic appointment within the same hospital or on the day agreed with the participant.
No intervention: Interviews contain no intervention, purely observational. | 9 |
| Total | 9 |
Baseline characteristics
| Characteristic | Semi-Structured Interview | — |
|---|---|---|
| Age, Customized Age between 15 and 19 | 9 Participants | — |
| Race and Ethnicity Not Collected | — | — Participants |
| Sex: Female, Male Female | 5 Participants | — |
| Sex: Female, Male Male | 4 Participants | — |
Adverse events
| Event type | EG000 affected / at risk |
|---|---|
| deaths Total, all-cause mortality | 0 / 9 |
| other Total, other adverse events | 0 / 9 |
| serious Total, serious adverse events | 0 / 9 |
Outcome results
Primary
Number of Participants That Completed Interviews About Consultation Summaries They Were Receiving
The aim of this research is to understand the views of adolescent patients on consultation summaries and identify factors can improve these summaries and subsequently their health and well-being.
Time frame: 1 month
| Arm | Measure | Value (COUNT_OF_PARTICIPANTS) |
|---|---|---|
| Semi-structured Interview | Number of Participants That Completed Interviews About Consultation Summaries They Were Receiving | 9 Participants |