DataBase of pulmoNary hyPertesion in PoLish Population - BNP-PL

Conditions

Chronic Thromboembolic Pulmonary Hypertension, Pulmonary Arterial Hypertension

Keywords

Pulmonary Hypertension,, CTEPH, Pulmonary Arterial Hypertension, Registry, Data Base, Polish patients

Brief summary

The BNP-PL is a multicenter, observational study in which patients are prospectively followed in order to investigate clinical course and management of pulmonary hypertension in Poland. All patients diagnosed with pulmonary arterial hypertension and chronic thromboembolic pulmonary hypertension confirmed in right heart catheterization, will be eligible to participate in the study.

Detailed description

The BNP-PL Registry is an initiative of the Polish Cardiac Society Task Force for Pulmonary Vascular Diseases This study is conducted by the Polish Cardiac Society. All centers of pulmonary hypertension in Poland which are accredited by the National Health Fund have been invited to join the study. The data is administrated by the Jagiellonian University Medical College on the basis of an agreement between the Polish Cardiac Society, Jagiellonian University Medical College and pulmonary hypertension centres. The goal is to describe current practice and outcomes in patients with pulmonary arterial hypertension and chronic thromboembolic pulmonary hypertension. The data collection will have no impact on the way the patient is diagnosed and treated. Collection of data on patients with pulmonary hypertension is carried out via the electronic platform. No personal data is entered into the project database.

Braksator M, Kurzyna M, Kopeć G, Pruszczyk P, Mroczek E, Mularek-Kubzdela T, Skoczylas I, Błaszczak P, Chrzanowski Ł, Jaguszewski M, Mizia-Stec K, Gąsior Z, Grześk G, Jacheć W, Lewicka E, Ptaszyńska-Kopczyńska K, Tomaszewski M, Malinowska E, Darocha S, Waligóra M, Jachymek M, Lewandowski M, Peregud-Pogorzelska M.

2025-04-01

10.1016/j.healun.2025.03.020

Effects of β-Blockers on the Outcomes in Patients With Pulmonary Arterial Hypertension Stratified by the Presence of Comorbid Conditions: A Multicenter Prospective Cohort Study: The Database of Pulmonary Hypertension in the Polish Population (BNP-PL).

Waligóra M, Kurzyna M, Mularek-Kubzdela T, Skoczylas I, Chrzanowski Ł, Błaszczak P, Jaguszewski M, Kuśmierczyk B, Ptaszyńska K, Grześk G, Mizia-Stec K, Malinowska E, Peregud-Pogorzelska M, Lewicka E, Tomaszewski M, Jacheć W, Florczyk M, Mroczek E, Gąsior Z, Pawlak A, Betkier-Lipińska K, Pruszczyk P, Widejko K, Zabłocka W, Kopeć G.

2024-11-093 citations

10.1016/j.chest.2024.10.051

Balloon pulmonary angioplasty in chronic thromboembolic pulmonary hypertension: a multicentre registry.

Darocha S, Roik M, Kopeć G, Araszkiewicz A, Furdal M, Lewandowski M, Jacheć W, Grabka M, Banaszkiewicz M, Pietrasik A, Pietura R, Stępniewski J, Waligóra M, Magoń W, Jonas K, Łabyk A, Potępa M, Fudryna A, Jankiewicz S, Sławek-Szmyt S, Mularek-Kubzdela T, Lesiak M, Mroczek E, Orłowska J, Peregud-Pogorzelska M, Tomasik A, Mizia-Stec K, Przybylski R, Podolec P, Zieliński D, Biederman A, Torbicki A, Pruszczyk P, Kurzyna M.

2022-01-0139 citations

10.4244/eij-d-21-00230

Characteristics and outcomes of patients with chronic thromboembolic pulmonary hypertension in the era of modern therapeutic approaches: data from the Polish multicenter registry (BNP-PL)

Grzegorz Kopeć, Olga Dzikowska‐Diduch, Ewa Mroczek, Tatiana Mularek‐Kubzdela, Łukasz Chrzanowski et al. (37 authors)

Therapeutic Advances in Chronic Disease2021-01-0135 citations

10.1177/20406223211002961

Interventions

None listed

Study design

Observational model

CASE_ONLY

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Age

3 Months to No maximum

Healthy volunteers

No

Inclusion criteria

Patients with pulmonary arterial hypertension or chronic thromboembolic pulmonary hypertension diagnosed after 1st March 2018 (incident cases) who: * are aged \> 3 months at the time of enrollment * fulfill the following hemodinamic criteria: mean pulmonary arterial pressure (mPAP) of 25 mm Hg or more, mean pulmonary arterial wedge pressure (PAWP) or left ventricular end-diastolic pressure (PVEDP) of 15 mm Hg or less, pulmonary vascular resistance (PVR) of 3 Woods. Patients with pulmonary arterial hypertension or chronic thromboembolic pulmonary hypertension diagnosed before 1st March 2018 (prevalent cases) who: * are aged \> 3 months at the time of enrollment * fulfill the following hemodinamic criteria: mean pulmonary arterial pressure (mPAP) of 25 mm Hg or more, mean pulmonary arterial wedge pressure (PAWP) or left ventricular end-diastolic pressure (PVEDP) of 15 mm Hg or less, pulmonary vascular resistance (PVR) of 3 Woods

Design outcomes

Primary

Measure	Time frame	Description
Mortality	Since enrollment until at least 5 years.	The number of patients who die during the follow-up period

Countries

Poland

Contacts

Primary ContactGrzegorz Kopeć

grzegorzkrakow1@gmail.com+48 12 614 33 99

Backup ContactMagdalena Studnicka

mstudnicka@medicalartgroup.pl+48 602460707

Outcome results