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Incidence of Paraneoplastic Neurological Syndromes and Autoimmune Encephalitis

Incidence of Paraneoplastic Neurological Syndromes and Autoimmune Encephalitis in France Between 2016 and 2018

Status
UNKNOWN
Phases
Unknown
Study type
Observational
Source
ClinicalTrials.gov
Registry ID
NCT03957616
Acronym
IPNSAE
Enrollment
600
Registered
2019-05-21
Start date
2019-05-30
Completion date
2019-07-31
Last updated
2019-05-21

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Autoimmune Encephalitis, Paraneoplastic Neurological Syndrome

Brief summary

This study aims to provide an estimate of the incidence of paraneoplastic neurological syndromes and autoimmune encephalitides in France between the years 2016 and 2018. The study will describe the incidence of antibody subtypes and regional variations.

Interventions

None listed

Sponsors

Hospices Civils de Lyon
Lead SponsorOTHER

Study design

Observational model
COHORT
Time perspective
RETROSPECTIVE

Eligibility

Sex/Gender
ALL
Healthy volunteers
No

Inclusion criteria

\- Clinical diagnosis of Paraneoplastic Neurological Syndrome (PNS) or Autoimmune Encephalitis (AE) made by the referring physician to the national center for PNS and AE in Lyon between 2016 and 2018

Exclusion criteria

* Data on location of diagnosis missing * Patients diagnosed out of the mainland French territory * Patients for whom insufficient data was available

Design outcomes

Primary

MeasureTime frameDescription
Incidence and prevalence of diagnosed Paraneoplastic Neurological Syndromes (PNS) and Autoimmune Encephalitis (AE) between 2016 and 2018.3 yearsComparison between general population of the French counties and the cohort of PNS to calculate incidence and prevalence.

Secondary

MeasureTime frameDescription
Location (city) of diagnosis1 hourName of city where the diagnosis of Paraneoplastic Neurological Syndromes (PNS) or Autoimmune Encephalitis (AE) was made.
French general population of each counties3 yearsPerson years for each region

Countries

France

Contacts

Primary ContactGéraldine Picard
geraldine.picard@chu-lyon.fr4 72 35 58 42
Backup ContactJérôme Honnorat
jerome.honnorat@chu-lyon.fr4 72 35 78 06

Outcome results

None listed

Source: ClinicalTrials.gov · Data processed: Feb 4, 2026