Advance Care Planning, Advance Medical Directives, Ethnic Minorities, Living Will, Muslims, Turkish Origin
Conditions
Brief summary
Advance care planning (ACP) enables individuals to define goals and preferences for future medical treatment and care, to discuss these goals and preferences with family and health-care providers, and to record and review these preferences if appropriate. Research has shown that most Western patients express the need about what ACP entails. Ethnicity creates an important cultural impact on how people look at life and death, so that there is an influence on making decisions about end-of-life care. The Turkish ethnic group is one of the largest visible non-Western minority groups in Western countries. Studies on how ACP is perceived among patients from Turkish origin are lacking. The objective of this study is exploring the knowledge, experiences, point of views, preferences, attitudes, facilitators and barriers concerning advance care planning of older people from Turkish origin in Belgium. Semi-structured interviews (in the native Turkish language) will be used.
Interventions
OTHERInterview
One to one interview
Sponsors
Universitair Ziekenhuis Brussel
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
OTHER
Masking
NONE
Intervention model description
One to one Interviews
Eligibility
Sex/Gender
ALL
Age
65 Years to No maximum
Healthy volunteers
No
Inclusion criteria
People: * with Turkish origin who live in Belgium and are older than 65 years * who have also given informed consent to participate in this qualitative interview study
Exclusion criteria
* Patients who are terminal ill which means having a life-limiting disease with irreversible decline and who are actively dying (actively dying is related to patients with days of survival). (41) * Having cognitive impairment
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Knowledge about advance care planning from older people from Turkish origin in Belgium | 9 months | This is a qualitative study. We developed a semi-structured interview guide with the following questions: What do you know in relation to advance care planning? |
| Experiences about advance care planning from older people from Turkish origin in Belgium | 9 months | This is a qualitative study. We developed a semi-structured interview guide with the following questions:Have you yourself ever thought about your future healthcare? Have you yourself ever looked up something about that? |
| Views/preferences about advance care planning from older people from Turkish origin in Belgium | 9 months | This is a qualitative study. We developed a semi-structured interview guide with the following questions: What do you think about discussing advance care planning now for the future? Even if you do not have such a serious illness at the moment, what are the advantages and disadvantages about discussing your wishes for the future, now? |
| Attitudes about advance care planning from older people from Turkish origin in Belgium | 9 months | This is a qualitative study. We developed a semi-structured interview guide with the following questions: Before you got severe illness, do you wish to discuss to someone your future wishes in advance? Why? Do you wish to give authority on your behalf to someone? Why? |
| Barriers and facilitators for advance care planning from older people from Turkish origin in Belgium | 9 months | This is a qualitative study. We developed a semi-structured interview guide with the following questions: In your opinion, what makes it easier or what would make it easier to talk about advance care planning? In your opinion, what makes it harder to talk about advance care planning? |
Countries
Belgium
Outcome results
None listed