Multiple Sclerosis
Conditions
Keywords
multiple sclerosis, surveys and questionnaires, diagnostic self evaluation
Brief summary
Multiple Sclerosis Knowledge Questionnaire (MSKQ) is a 25-item self administered questionnaire assessing a patient's level of knowledge regarding multiple sclerosis (MS). Turkish translation of the questionnaire was prepared and participants in the annual patient education seminar in the investigators' university hospital were asked to answer these questions before and after the seminar.Their results were analysed to assess their level of knowledge about their disease.
Detailed description
Multiple sclerosis knowledge questionnaire was developed in Italy (1) and was reported to be useful in measuring patients' level of knowledge about their disease. The English version of the questionnaire was translated into Turkish by three physicians than back translated into English by two separate linguists. Initially 5 MS patients were asked to answer this first version of the questionnaire and report any difficulties in understanding the items. Their feedback was used to give the questionnaire its final shape. For the validation stage, patients that were diagnosed as having MS and who attended the annual MS patient education seminar were enrolled into the study. They answered the questions twice, before and after the seminar. Their answers were analysed to measure their level of knowledge about their disease.
Interventions
OTHERMultiple Sclerosis Knowledge Questionnaire
A 25-item self-administered questionnaire
Sponsors
Ege University
Study design
Observational model
CASE_ONLY
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Diagnosed as having Multiple Sclerosis * Attends the annual patient education seminar at the investigators' university hospital * Older than 18 years of age * Can read and write
Exclusion criteria
* Does not accept to answer the questionnaire * Unable to answer the questions due to a cognitive impairment
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| reliability of the questionnaire | 1 day | Internal consistency was evaluated by the coefficient alpha (α) or Cronbach's coefficient, and if the Cronbach's coefficient value was greater than 0.7, it was considered as an acceptable internal consistency |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Number of correct answers | 1 day | To assess the distribution of correct and false answers and the levels of significance, Chi-square test was used. To compare the two questionnaires answered by the same patient before and after the seminar Wilcoxon signed-rank test was used. |
Outcome results
None listed