Anticoagulation, Health Literacy
Conditions
Keywords
Warfarin, Child
Brief summary
Effective patient education improves health literacy and engagement thus improving long-term health outcomes. Health literacy is imperative to make informed health decisions and relies on the ability to obtain, process and understand health information; and is the cornerstone of safe health management. It is necessary to evaluate educational initiatives to determine their effectiveness in knowledge translation. A more effective way to provide patient education is to utilize media technology. Current education styles do not teach patients in the best way as they are not consistent with how people of all ages currently learn (through technology). In addition, patient teaching most commonly occurs during highly stressful times like hospital visits with new diagnoses. Current patient educational methods are costly given the amount of health provider time required. Electronic KITE teaching modules are infographic visual representations that present information quickly and clearly, integrating words and graphics to tell a story to reveal information. Infographic presentations are tools which facilitate self-directed learning with understandable, accessible information presented in an engaging way with an aim to enhance learning for children and their families. Patients are able to learn at a pace consistent with their learning style to facilitate knowledge development and health literacy.
Detailed description
A more effective way to provide patient education is to utilize media technology. Current education styles do not teach patients in the best way as they are not consistent with how people of all ages currently learn (through technology). In addition, patienteaching most commonly occurs during highly stressful times like hospital visits with new diagnoses. Current patient educational methods are costly given the amount of health provider time required. Electronic KITE teaching modules are infographic visual representations that have been developed to provide patient teaching related to warfarin and its management. How much patients have learned will be assessed using the KIDCLOT validated knowledge quizzes. Children 8 years and older to have cognitive capacity will complete the quizzes if able. Caregivers will complete all quizzes linked with the modules they have completed. Patients may be enrolled into the appropriate cohort based on the health provider decision for management. 1. Warfarin international normalized ratio (INR) testing 2. Warfarin with home INR testing 3. Warfarin transition from home INR testing to warfarin self management.
Interventions
OTHERelearning patient information
The videos will standardize patient teaching about anticoagulants, warfarin, INR testing, and warfarin safety for Patient Self-Testing, and Patient Self-Management. eKITE, will provide a user-friendly interface to provide health education about anticoagulation. eKITE will teach concepts to the patient, facilitate sustained patient knowledge (6 month evaluation), reduce stress associated with learning, actively engage patients in their anticoagulant management (preference, satisfaction and knowledge).
Sponsors
University of Alberta
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
No minimum to 18 Years
Healthy volunteers
No
Inclusion criteria
* Pediatric patients and their caregivers who are receiving treatment with anticoagulant therapy.
Exclusion criteria
* Non-english speaking patients.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Kidclot Warfarin Self Management Quiz 6 | 6 months | Quiz to assess patient learning of important concepts related to Warfarin Self Management |
| KIDCLOT What is an Anticoagulant Quiz1 | enrolment | Quiz to assess patient learning of important concepts related to anticoagulants |
| Kidclot Warfarin Quiz 2 | enrolment | Quiz to assess patient learning of important concepts related to warfarin |
| KIdclot INR testing Quiz 3 | enrolment | Quiz to assess patient learning of important concepts related to INR testing |
| Kidclot safety on an anticoagulant Quiz 4 | enrolment | Quiz to assess patient learning of important concepts related to patient safety on an anticoagulant |
| Kidclot Home INR testing Quiz 5 | enrolment | Quiz to assess patient learning of important concepts related to home INR testing |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Patient preference | enrolment | Questionnaire |
| Stress Around Learning Score STAI-1 | enrolment | Survey to Assess patient stress around learning about warfarin and its management using the on-line modules. Measure of Calm.- Total score out of 40 with higher score indicates low stress and a positive outcome |
| Pediatric Anticoagulation Quality of Life | 6 | Quality of life score to assess impact of warfarin therapy on health related quality of life. Lower score indicates low impact. Score is a percentage |
Other
| Measure | Time frame | Description |
|---|---|---|
| Health care provider time associated with warfarin teaching | enrolment, 6 months and 18 months | Providers will measure and report the additional time spent providing patient teaching for warfarin management |
| Time in therapeutic Range | 18 months | Time INRs are within range |
Countries
Canada, United States
Outcome results
None listed