Juvenile Idiopathic Arthritis
Conditions
Keywords
Role of parents, children and physician, Qualitative, Interview, Juvenile idiopathic arthritis, Adherence, mechanisms of adherence in juvenile idiopathic arthritis
Brief summary
According to the International League of Associations for Rheumatology classification, Juvenile Idiopathic Arthritis (JIA) comprises a heterogeneous group of arthritis of unknown cause and with onset before 16 years of age, characterized by joint inflammation lasting for 6 or more weeks. Few studies exist regarding the care experience of children affected by this rheumatic condition. On the other hand, methotrexate and biologics constitute the primary treatment for children with JIA. As with adults undergoing the same treatment, adherence is critical. Difficulties for children to take the drugs have been reported. Notwithstanding, if adherence promotion in pediatric chronic conditions has been the subject of recommendations with regard to care management, the investigators lack information to understand the grounds for adherence specifically in JIA. In order to understand and decipher the parent-child adherence mechanisms and practices, the RUMAJI study will be conducted. Indeed, improving the relational approach between children and their caregivers as well as unrestricted drug adherence involves researching and understanding how appropriation of the disease and treatment could be achieved.
Interventions
OTHERInterviews with parents of children with juvenile idiopathic arthritis
Interviews with parents of children with juvenile idiopathic arthritis
OTHERInterviews with children with juvenile idiopathic arthritis
Interviews with children with juvenile idiopathic arthritis
OTHERInterviews with Physicians
Interviews with Physicians
Sponsors
Research department, unknowns, Strategic & innovation consulting, Paris (anthropologists)
NORDIC pharma (funding)
University Hospital, Montpellier
Study design
Observational model
OTHER
Time perspective
RETROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
1 Years to 17 Years
Healthy volunteers
No
Inclusion criteria
* all JIA forms * all treatment type (NSAIDs, MTX, bDMARDs)
Exclusion criteria
\- none
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Interview with parents | 1 day | Interview with parents to learn about role of parents in the management of juvenile idiopathic arthritis in their children |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Interview with children | 1 day | Interview with children to learn about role of children in the management of their juvenile idiopathic arthritis |
| Interview with physicians | 1 day | Interview with physicians to learn about role of physicians in the management of juvenile idiopathic arthritis |
Countries
France
Outcome results
None listed