Skip to content

North Health in Intellectual Disability

Health Indicators, Functioning and Health Care Services in Youths and Adults With Intellectual Disabilities. A Cross-sectional Multicentre Study.

Status
Completed
Phases
Unknown
Study type
Observational
Source
ClinicalTrials.gov
Registry ID
NCT03889002
Acronym
NOHID
Enrollment
214
Registered
2019-03-25
Start date
2017-10-01
Completion date
2019-12-09
Last updated
2020-04-06

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Intellectual Disabilities (F70-F79)

Keywords

Intellectual disabilities, Health indicators, Functioning, Health care services

Brief summary

Intellectual disability (ID) is a diagnosis characterized by significant limitations both in intellectual functioning and in adaptive behavior as expressed in conceptual, social and practical adaptive skills. The disability originates before age 18 years. People with IDs will often require health- and social services throughout their lifetimes. Studies report worse health among people with IDs compared to the general population, in addition to more unmet healthcare needs and more difficulty accessing healthcare. There are also concerns about low levels of physical activity in this population. In general health surveys in Norway do not include people with intellectual disabilities, and studies of health indicators in this group are largely lacking. Further, the unique organization of services for this group in Norway calls for specific research efforts. This project will use multinational health indicators for youths and adults with IDs in a biopsychosocial context in attempt to identify unmet health care needs to improve services. In addition to a description of the health indicators, the objective of this project is delimited to assess the health determinant physical activity level in association with body mass index (BMI) and functioning.

Detailed description

People with IDs are experiencing more illnesses and approximately 80% of adults 50 years or older have multimorbidities. To improve services, information about health care provision should be complemented with knowledge about the health situation and functioning in a community-based setting. The main objectives of this study are to describe health indicators in a Norwegian population of youths and adults with IDs in relation to age, and to assess the associations between the health determinant physical activity and body mass index, physical function, activities and social participation in youths and adults with IDs. Assessments of physical and mental health indicators, and aspects of activities and social participation according to International Classification of Functioning, Disability and Health (ICF), in relation to health determinants and unmet healthcare needs in a cross-sectional health screening survey. The prevalence of suitable health indicators will be compared to studies in this area and from the following Norwegians population based studies: the Tromsø-study, the HUNT study and the NORSE study. The following articles will be published as part of this project: 1. A feasibility study of the use of tests like the Short Physical Performance Battery. 2. An overview of the health indicators among youths and adults with intellectual disabilities in Norway, in relation to age groups. 3. Presentation of levels and predictors for physical activity, as well as body mass index, in youths and adults with IDs. 4. Presentation of functioning (daily activities and work) in association to levels of physical activity.

Interventions

None listed

Sponsors

Norwegian Extra Foundation for Health and Rehabilitation
CollaboratorOTHER
The Norwegian Association for Persons with Developmental Disabilities
CollaboratorUNKNOWN
University of Tromso
CollaboratorOTHER
Norwegian University of Science and Technology
CollaboratorOTHER
Research Centre for Habilitation and Rehabilitation Models and Services
CollaboratorUNKNOWN
Norwegian Centre for Ageing and Health
CollaboratorOTHER
University Hospital of North Norway
Lead SponsorOTHER

Study design

Observational model
ECOLOGIC_OR_COMMUNITY
Time perspective
CROSS_SECTIONAL

Eligibility

Sex/Gender
ALL
Age
16 Years to No maximum
Healthy volunteers
Yes

Inclusion criteria

* Clinical diagnosis of intellectual disability * Age 16 or older and providing consent to participate.

Exclusion criteria

\-

Design outcomes

Primary

MeasureTime frameDescription
Health indicators in a Norwegian population of youths and adults with intellectual disabilities.BaselineHealth indicators as measured by The POMONA Checklist of Health Indicators (P15). The health indicators include measures of socio-demographics, Health status, Health determinants and Health systems.Physical Activity is defined as a Health determinant in this study in accordance With the POMONA Health indicator classification.

Secondary

MeasureTime frameDescription
Communication Function Classification System (CFCS).BaselineThe CFCS is a 5-category rating system. Where Level 1 is best and Level 5 worst.
The Community Integration Questionnaire (CIQ).BaselineThe scale contains 15 items to assess social role limitations and community interactions in persons With Health disorders. The items are scored on a likert-type scale. The total scale range fraom 0-29 where 29 is Maximum community integration.
The Coherence of social care scale.BaselineThe Coherence of social care scale measures the coherence of social care and the stability of services in general. The scale uses a responscale from 1-4 (higher is better)
The Timed Up and GO (TUG).BaselineThe TUG measures Balance, gait and general functioning. The time one person use to get up from a Chair, walk 3 meters and then return back to the Chair is measured in Seconds. Less time is better functioning.
One-legged Stance testBaselineThe One-legged Stance test measures balance. The time in Seconds of how long a person can Balance on one legg is measured. Longer time is better functioning.
The Short Physical Performance Battery (SPPB).BaselineThe SPPB measures physical functioning like balance, gait and muscular functioning. Total scale range from 0-12 (higher score indicate better functionin).
Body mass index (BMI)BaselineBMI is calculated by measuring height and weight.
Overarm circumference.BaselineOverarm circumference is measured.
Measuring Bloodpressure.BaselineSystolic and diastolic bloodpressure are measured.
Waist circumferenceBaselineWaist circumference is measured.
The Gross Motor Function Classification Scale (GMFCS).BaselineThe GMFCS measures motor functioning. It is a 5-category rating scale where 1 is most able and 5 is most Limited functioning.

Countries

Norway

Outcome results

None listed

Source: ClinicalTrials.gov · Data processed: Feb 11, 2026