Cancer
Conditions
Keywords
cancer patients, male cancer patients, Decision Aid (DA), online Decision Aid tool
Brief summary
This is a single center cross-sectional retrospective study with a quantitative and qualitative approach (phase 1 and 2). In phase 1 an online survey will be realized and targets male cancer survivors. Phase 2 will take a qualitative approach, in which information about patient's experiences, needs and helpful support will be collected by establishing focus groups of cancer patients who had been diagnosed during the reproductive age. In the end, the results of this study will be integrated into the development of an online support tool concerning Fertility Preservation (FP).
Interventions
OTHERonline survey
Part 1: online survey (quantitative) with questions on basic socio-demographic data, medical data and family characteristics (e.g. age, ethnicity, education) and information about FP.
OTHERfocus group meeting
Part 2: At the end of the online survey, participants are invited to attend one of the consecutively performed focus groups conducted according to standardized focus group methodology and moderated by a clinical psychologist and a specialist in reproductive medicine.
Sponsors
Krebsforschung Schweiz, Bern, Switzerland
University Hospital, Basel, Switzerland
Study design
Observational model
OTHER
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
MALE
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* German speaking * Cancer diagnosis within the last 10 years (minimum age at diagnosis 13 years) * Cancer therapy that was expected to impair fertility
Exclusion criteria
* Prepubertal at diagnosis
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| male cancer patients level of information with regard to FP | Phase 1 online survey at baseline | Phase 1: exploratory online survey inquiring male cancer patients level of information with regard to FP |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| male cancer patients needs regarding decision-making about FP | Phase 1 online survey at baseline | exploratory online survey inquiring which kind of support regarding decision-making about FP do male cancer patients consider helpful |
| male cancer patients expectation with regard to an online DA tool about FP | Phase 1 online survey at baseline | exploratory online survey inquiring how an online Decision Aid (DA) tool about FP has to be designed in order to be helpful for male cancer patients |
Countries
Switzerland
Outcome results
None listed