Hematological Malignancy, Palliative Care, Platelet Transfusion
Conditions
Keywords
social representation
Brief summary
Limited data is available for end of life care in hematologic malignancies, moreover with thrombocytopenic patients. Thrombopenia is a frequent complication, specific of bone marrow involvement in those diseases or its treatments. Yet, a few studies was interested in, whereas platelet transfusion is the only treatment indicated. As it represent a scarce, limited resource, the ethical principles are in conflict in this setting and there's a lack of recommendation. The final decision is take by the clinician and his patient, but no study exist in representation of the two parts. We provide a qualitative study to understand what this decision is made of.
Interventions
OTHERmulti method questionary (developped by De Rosa, in 1995 and 2014)
questions from an association network according to the subject and the grounded theorise (Glasser and Strauss)
Sponsors
Centre Hospitalier Universitaire de Besancon
Study design
Observational model
OTHER
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to 100 Years
Healthy volunteers
No
Inclusion criteria
* major patient * patient with advanced hematological malignancies * patient transfused in platelet regularly (3 time at least in last month) * medical practioner, hematologist, prescribing platelet transfusion at least one per week. * nurse working in hematology, practicing platelet transfusion at lest one peer week.
Exclusion criteria
* minor patient * non communicant patient * non transfused platelet patient * non voluntary patient or hematologist or nurses * non graduated hematologist
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| measure the impact of social representation on platelet transfusion practice | 3 months | inner core and peripheral items of platelet transfusion of each participant will be collected until reaching saturation, it's to say that the repetition of some terms will be measured between each interview thank's to a questionnaire of at least two principals opened questions. |
Countries
France
Outcome results
None listed