Development and Needs Assessment and Efficiency of Smart Communication System for Patients With ALS (Part 1)

Taipei Veterans General Hospital

Status

UNKNOWN

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT03806647

Enrollment

Registered

2019-01-16

Start date

2018-09-01

Completion date

2020-09-01

Last updated

2019-01-18

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Amyotrophic Lateral Sclerosis

Keywords

Amyotrophic lateral sclerosis, ALS, communication, needs

Brief summary

The research is aimed to explore the needs of clinical patients and their caregiver,so as to provide suggestions to the designer of the communication system.

Detailed description

To promote and develop a smart communication system is helpful to patients with amyotrophic lateral sclerosis (ALS),especially for stage 3 and stage 4 (late stage). Through the needs assessment, the research is aimed to explore the needs of clinical patients and their caregiver,so as to provide suggestions to the designer of the communication system.

Interventions

None listed

Study design

Observational model

COHORT

Time perspective

RETROSPECTIVE

Eligibility

Sex/Gender

ALL

Age

20 Years to No maximum

Healthy volunteers

Inclusion criteria

* Clinical diagnosis of ALS * Taiwanese and used traditional Chinese(Mandarin). * If they were older than age 20 years.

Exclusion criteria

* Frontotemporal dementia, severe depression, or schizophrenia. * If they cannot complete the questionnaire with researchers or family members help.

Design outcomes

Primary

Measure	Time frame	Description
Amyotrophic Lateral Sclerosis Supportive Care Needs (ALSSCN)	2018.10.01~2020.04.31	The ALSSCN consisted of 37 items with seven domains: physical, psychological, emotional, spiritual, social, informational, and practical needs.

Countries

Taiwan

Contacts

Primary ContactSi Huei Li

lableesihuei@gmail.com886-2871-2121

Backup ContactCheng Liang Chou

cl_chou@vghtpe.gov.tw886-2871-2121

Outcome results