Bone Marrow Transplant
Conditions
Keywords
bone marrow, stem cell, donor, interview
Brief summary
The purpose of this pilot study is to explore the role of family function on decision-making for bone marrow donors who donated for their parent, and to assess the unique supportive care needs of these participants. Semi-structured interviews were conducted with participants to identify overarching themes of the donation experience.
Interventions
OTHERSemi-structured Interview
Sponsors
Duke University
Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins
Study design
Observational model
CASE_ONLY
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
13 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
* Donated bone marrow or peripheral blood stem cells for their parent in the past 1-6 months * Willing to participate in mandatory audio recorded telephone interview * Able to participate in interview without assistance * Must be English speaking * Transplant recipient (parent) must be living
Exclusion criteria
* Unable to provide oral consent for participation (for minors- unable to obtain parental consent and/or oral assent from child for participation)
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Themes influencing donors' decision-making as assessed by words used during interview responses | Day 1 | Words/terms are extracted from interviewer responses and associated to key themes that influence participant's decision-making process. A codebook is used to reference these words/terms |
Outcome results
None listed