Musculoskeletal Disease
Conditions
Brief summary
The main aim of this multicentre cohort study is to provide evidence that can be used to improve continuity and quality in rehabilitation practice and rehabilitation processes across health care levels for patients with rheumatic and musculoskeletal diseases (RMDs).
Detailed description
There is an urgent need to develop rehabilitation trajectories that ensure coordination and communication between health care levels, support of self-management and self-monitoring, and follow-up tailored to patients' needs. Such trajectories should be based on evidence from current practice. The Rehabilitation trajectories project will systematically explore and describe current practice of planned and implemented follow-up and self-management strategies in primary health care during the first year after rehabilitation for patients with musculoskeletal diseases. Further, a newly developed core set of PROMs designed for evaluation of rehabilitation in RMDs and a self-monitoring web-based system will be tested for feasibility. Knowledge of patients' experiences and use of this self-monitoring system as a self-management and communication tool is needed in order to improve and integrate such e-technology in future care. The Rehabilitation Trajectory study is a multi-centre study, led by the National Unit on Rehabilitation in Rheumatology and including participants at four rheumatology hospital departments and five specialized rehabilitation institutions. Participants will thus be included from all four health regions in Norway. The study has five points of assessment. In an electronic portal, delivered by CheckWare, patients will log in with their Bank ID and complete the core set of PROMs at admission, discharge, and 4, 8 and 12 months following discharge.
Interventions
None listed
Sponsors
Haugesund Rheumatism Hosptial AS
Betanien Hospital
Vikersund Rehabilitation Center AS
Meråker Rehabilitation Center
North Norway Rehabilitation Center
UniCare Jeløy
Sørlandet Hospital
Innlandet HF Konsvinger Hospital
Rehab Vest Rehabilitation Hospital
National Resource Center for Rehabilitation in Rheumatology
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to 100 Years
Healthy volunteers
No
Inclusion criteria
* Admitted to rehabilitation at one of the nine participating rehabilitation centres with one of the following groups of diagnosis: Inflammatory rheumatic disease, Osteoarthritis, Low back pain, Neck/shoulder pain, Generalized pain syndromes (including fibromyalgia), Osteoporosis, Connective tissue diseases (SLE, Lupus, Myositis etc.), Fractures with need of rehabilitation, or Rehabilitation after orthopaedic surgery. Good proficiency in oral and written Norwegian language. Access to internet and BankID.
Exclusion criteria
* Cognitive impairment or severe mental illness.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Goal attainment | One year | Goal attainment will be measures by the Patient Specific Functional Scale. Scale from 0 to 10, were 10 is the best score. Mean score is calculated from all activites scored. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Health-realted quality of life | One year | Health-realted quality of life will be measured by the EQ5D |
| Physical function | One year | Physical function will be measured by the 30 seconds sit to stand test |
Other
| Measure | Time frame | Description |
|---|---|---|
| Function in daily acitvities | One year | Daily activities will be measured by the Hannover Functional Ability Questionnair |
| Coping | One year | Coping will be measures by the Effective Musculoskeletal Consumer Scale. The scale goes from 0 to 4, were 0 stated never and 4 states always. |
| General Pain | One year | Pain will be measured on a numeric rating scale (NRS). Pain is measured on a subjective scale from 0 to 10, were 0 is no pain and 10 is the worst pain. |
| Participation | One year | Participation will be measured by the participation scale in COOP/WONKA |
| Mental health | One year | Mental health will be measured by the Hopkins Symptoms Checklist |
| Fatigue | One year | Fatigue will be measured on a numeric rating scale (NRS). Fatigue is measured on a subjective scale from 0 to 10, were 0 is no fatiuge and 10 is the worst abount of fatigue. |
| Motivation for goal attainment | One year | Motivation for goal attainment will be measured on a numeric rating scale (NRS). Motivation is measured on a subjective scale from 0 to 10, were 0 is no motviation and 10 is the best and highest motivation. |
Outcome results
None listed