Angelman & Rett Syndrome: Interaction and Communication

Parent-child Interaction and Communication in Families Who Have a Child With Rett Syndrome or Angelman Syndrome

Status

Completed

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT03720028

Enrollment

Registered

2018-10-25

Start date

2018-12-01

Completion date

2020-07-01

Last updated

2020-12-21

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Behavior, Child, Communication, Parent-Child Relations

Brief summary

We aim to describe the communicative and sensory profile of children with Angelman syndrome or Rett syndrome and their use of augmentative and alternative communication. In addition, parents are surveyed regarding parent-child interaction and access to communication support.

Interventions

BEHAVIORALObservation

Describe communication and sensory profile using standardized tests and observations.

BEHAVIORALParental experiences

Survey parents' experiences with parent-child interaction and augmentative and alternative communication.

Study design

Observational model

COHORT

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Age

1 Years to 14 Years

Healthy volunteers

Inclusion criteria

* Angelman or Rett syndrome

Exclusion criteria

* none

Design outcomes

Primary

Measure	Time frame	Description
Communication profile	1 day One-time measurement	Scores on language tests
Parent interaction	1 day One-time measurement	Scores on social tests

Countries

Belgium

Outcome results

None listed

Source: ClinicalTrials.gov · Data processed: Feb 4, 2026