Adolescent, Chinese, Congenital Heart Disease, Psychological Well-being, Quality of Life
Conditions
Keywords
Congenital Heart Disease, Hong Kong, Adolescent
Brief summary
This study aims to explore the impacts of CHD and its limitations on adolescents and the living experience of adolescents living with CHD. Hong Kong Chinese adolescents with CHD are having reduced psychological well-being and quality of life than their healthy counterparts. Qualitative study is therefore needed to explore how CHD may impact on the adolescents' psychological well-being and quality of life.
Detailed description
A qualitative study was adopted. Purposive sampling of 30 adolescents with CHD were done. Thematic analysis was used for data analysis. The participants unfold negative impacts of CHD and its treatments, and the challenges they were facing with their relationship with others.
Interventions
None listed
Sponsors
The University of Hong Kong
Study design
Observational model
CASE_ONLY
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Age
12 Years to 18 Years
Healthy volunteers
No
Inclusion criteria
* Hong Kong Chinese adolescents * aged 12 to 18 * able to read and write Chinese * attending outpatient clinic of Department of Pediatric Cardiology
Exclusion criteria
* adolescents with non-structural heart disease * with developmental delay or comorbid medical conditions
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| living experience of adolescents with CHD | 1 day | Participants were asked to describe their living experiences with CHD and how has CHD affected their quality of life and psychological well-being during the semi-structure interview. |
Countries
Hong Kong
Outcome results
None listed