Lymphoma, B-Cell, Lymphoma, B-Cell, Marginal Zone, Lymphoma, Extranodal NK-T-Cell, Lymphoma, Large B-Cell, Diffuse, Lymphoma, T-Cell, Cutaneous, Sezary Syndrome
Conditions
Brief summary
Registry of patients with Primary Cutaneous Lymphoma seen at participating centers in Spain. The registry will identify patients with this disease and includes information about stage, diagnostic and therapeutic interventions and willingness to participate in further studies.
Detailed description
Registry of patients with Primary Cutaneous Lymphoma seen at participating centers in Spain. The registry will identify patients with this disease and includes information about stage, diagnostic and therapeutic interventions and willingness to participate in further studies. Data is entered in the registry in each of the participating cutaneous lymphoma clinics. These data are updated at least yearly. Participants receive specific training before starting, and there is an online continuous monitoring system.
Interventions
OTHERRegistry of patients (exposure is Cutaneous Lymphoma)
Sponsors
Fundación Academia Española de Dermatología
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Healthy volunteers
No
Inclusion criteria
* All consecutive patients with primary cutaneous lymphoma
Exclusion criteria
* Not willing to participate
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Maximum TNM stage | Through study completion, an average every 1 year | Proportion |
| Therapeutic groups used | Through study completion, an average every 1 year | Including drugs, phototherapy, radiotherapy and procedures (blood marrow transplant) |
| Mortality | Through study completion, an average every 1 year | Rate |
Countries
Spain
Contacts
Primary ContactIgnacio Garcia-Doval, MD, PhD, MScEpid
Outcome results
None listed