Caregivers, Domestic Violence, Elder Abuse, Family Relations
Conditions
Keywords
Pilot Study, Cognitive Behavioral Therapy, Intervention Study
Brief summary
This pilot study will test the effect of an online asynchronous psychoeducational intervention to improve relationship quality and prevent verbal-type elder mistreatment in caregiving dyads. The investigators will use a pre-post test design to test the feasibility and acceptability of this video-based intervention, and to determine the likelihood that participation in this program may improve caregiver relationship quality.
Interventions
BEHAVIORALKINDER
KINDER is an online course for people assisting an older adult with dementia. It is intended to improve the quality of caregiver's relationship with the care recipient and reduce the chance of risky relationship behavior (e.g., yelling). Courses will cover topics including understanding cognitive impairments, navigating evolving roles, and dealing with frustration. During this course, participants will learn skills to deal with difficult situations caregivers frequently encounter in ways that support a healthy caregiving relationship. Videos will be story-based and represent different types of caregiving relationships and challenges encountered.
Sponsors
Archstone Foundation
University of Southern California
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
PREVENTION
Masking
NONE
Intervention model description
The investigators will evaluate the KINDER program using pre- and post-test analysis. Eligible and consented subjects enrolled on a rolling basis. After enrollment, all caregivers will complete a baseline assessment. Caregivers will receive the intervention (8 lessons, delivered once per week) and will be asked to complete a reassessment after 10 weeks. Two months later, participants will be asked to complete a second reassessment.
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
* Provides assistance to someone over the age of 60 with an illness or a disability (care recipient) who requires personal assistance from another person (e.g., bathing, preparing meals). (Assistance provided with at least 1 activity of daily living and/or at least 2 instrumental activities of daily living.) * Person receiving care from the study participant has a cognitive impairment. This does not have to be diagnosed. * Participant provides at least 8 hours of assistance to the care recipient per week * Participant does not intend to place the care recipient in a skilled nursing facility or assisted living facility within 3 months of consenting into the study
Exclusion criteria
* Does not read and speak English * Cannot access a computer and internet (needed to complete lessons)
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Change in frequency of verbal mistreatment | This measure will be asked immediately before the intervention, immediately after the intervention, and 2 months after the intervention is complete. The question asks participants about events in the previous 2 months. | This scale will measure frequency of verbal mistreatment using a measure based on the Conflict Tactics Scale (Straus et al., 1996), with additional questions from other items (Acierno et al., 2010; Beach et al., 2005; Conrad et al., 2011; Deliema et al., 2012) |
| Change in the number of positive aspects of the relationship with the care recipient (Dyadic Relationship Scale) | This measure will be asked immediately before the intervention, immediately after the intervention, and 2 months after the intervention is complete. The question asks participants about events in the previous 2 months. | Participants are asked how much they agree with positive statements about their relationship with the care receiver on a 0 to 3 scale. This item comes from Sebern & Whitlatch (2007) |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Change in caregiver burden (Zarit Burden Index) | This measure will be asked immediately before the intervention, immediately after the intervention, and 3 months after the intervention is complete. The question asks participants about events in the previous 3 months. | We will use the Zarit Burden Index developed by Zarit and colleagues (1980) |
| Change in caregiver competence (Caregiving Competence Scale) | This measure will be asked immediately before the intervention, immediately after the intervention, and 3 months after the intervention is complete. The question asks participants about events in the previous 3 months. | We will use the Caregiving Competence Scale developed by Pearlin and colleagues (1990) |
| Change in caregiver mastery (Caregiver Mastery Scale) | This measure will be asked immediately before the intervention, immediately after the intervention, and 3 months after the intervention is complete. The question asks participants about events in the previous 3 months. | We will use the Caregiver Mastery Scale developed by Pearlin & Schooler (1978) |
| Change in depression (Patient Health Questionnaire-9) | This measure will be asked immediately before the intervention, immediately after the intervention, and 3 months after the intervention is complete. The question asks participants about events in the previous 3 months. | We will use the Patient Health Questionnaire-9 (Kroenke et al., 2001) |
| Change in perceived stress (Perceived Stress Scale) | This measure will be asked immediately before the intervention, immediately after the intervention, and 3 months after the intervention is complete. The question asks participants about events in the previous 3 months. | We will use the Perceived Stress Scale developed by Cohen & Williamson (1988) |
Countries
United States
Outcome results
None listed