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Mental Health Care Coordination for Transition Aged Youth

Mental Health Care Coordination for Transition Aged Youth With Serious Emotional Disturbance/Serious Mental Illness

Status
Completed
Phases
NA
Study type
Interventional
Source
ClinicalTrials.gov
Registry ID
NCT03336892
Enrollment
220
Registered
2017-11-08
Start date
2016-04-01
Completion date
2019-10-31
Last updated
2021-02-23

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Mental Health

Keywords

Care Coordination

Brief summary

This study seeks to quantify the impact of recommended mental health care coordination practices on patient experiences of care, (i.e. satisfaction, stigma, quality of mental health care), evaluate the efficiency and effectiveness of the intervention (i.e. care coordination, timing, unmet needs), and assess mental health outcomes (i.e. symptoms and functioning, involvement with law enforcement/juvenile justice system; rates of substance use /abuse, service utilization) in a population of 16-22 year-old youth receiving primary care in a D.C. urban academic adolescent medicine practice, using standardized outcome measures.

Detailed description

In the maternal and child health field, there is increasing awareness of modifiable health conditions that appear early in the life course and impact development and wellness throughout the life span. Special opportunities exist in vulnerable populations with serious mental health conditions to better understand what life course events can facilitate attainment of optimal health and development. One such opportunity is making sure youth with serious emotional disturbance/serious mental illness receive the mental health services they need. Unfortunately, untreated mental illness among adolescents and young adults is a major public health problem. Particularly concerning is the fact that 80% of youth with serious emotional disturbance/serious mental illness are not receiving needed mental health services and unmet mental health needs are even higher among certain populations, including minority youth. Youth with untreated mental health problems face a number of challenges that are exacerbated when left untreated. For example, youth with serious mental illness tend to have more difficulties in school and more involvement with the criminal justice system than their peers. These youth also face more challenges successfully transitioning to adulthood and becoming productive members of society. Untreated mental illness tends to lead to more intensive and costly treatment down the road. There are many barriers to accessing mental health services, including stigma and difficulty navigating a complex mental health system, which contribute to unmet mental health needs. Additionally, youth may be so significantly impaired that expecting them to access mental treatment without some supportive services is unrealistic. In light of these facts, it becomes urgent to implement recommended standards for mental health integration and evaluate their impact on mental health outcomes. The Center for Integrated Health Solutions in a joint Health Resources and Services Administration (HRSA)-Substance Abuse and Mental Health Services Administration (SAMHSA) effort recently released expanded joint principles for behavioral health integration. In this model, coordinated care is defined by primary and behavioral health care provided at different locations in the medical neighborhood, but care is coordinated through enhanced communication across the two disciplines. This report makes available an important standard for establishing integrated mental health care coordination practices within a primary care setting, but also demands careful evaluation. This study seeks to quantify the impact of recommended mental health care coordination practices on patient experiences of care, (i.e. satisfaction, stigma, quality of mental health care), evaluate the efficiency/effectiveness of the intervention (i.e. care coordination, timing, unmet needs), and assess mental health outcomes (i.e. symptoms and functioning, involvement with law enforcement/juvenile justice system; rates of substance use /abuse, service utilization) in a population of 16-22 year-old youth receiving primary care in a D.C. urban academic adolescent medicine practice, using standardized outcome measures.

Interventions

BEHAVIORALMental Health Care Coordination

Enhanced usual care with written mental health resources and system navigation information in addition to individualized mental health care coordination by a dedicated specially trained mental health care coordinator.

Sponsors

Health Resources and Services Administration (HRSA)
CollaboratorFED
Children's National Research Institute
Lead SponsorOTHER

Study design

Allocation
RANDOMIZED
Intervention model
PARALLEL
Primary purpose
HEALTH_SERVICES_RESEARCH
Masking
SINGLE (Subject)

Eligibility

Sex/Gender
ALL
Age
16 Years to 22 Years
Healthy volunteers
No

Inclusion criteria

* has a diagnosis of serious emotional disturbance/serious mental illness * has not received outpatient mental health services in the past 30 days

Exclusion criteria

* does not have a diagnosis of serious emotional disturbance/serious mental illness * has received outpatient mental health services in the past 30 days

Design outcomes

Primary

MeasureTime frameDescription
Connection to mental healthcare2 yearsNumber of study participants self-reported receiving mental health care services since enrollment

Secondary

MeasureTime frameDescription
Patient Experiences2 yearsExperience of Care and Health Outcomes (ECHO) Survey
Depression symptoms2 yearsPHQ-9 Questionnaire
Mental Health Stigma2 yearsInternalized Stigma of Mental Illness (ISMI) Questionnaire
Patterns of substance use2 yearsYouth Risk Behavior Survey (YRBS) Questionnaire
Adverse Childhood Events2 yearsPhiladelphia ACE Survey

Outcome results

None listed

Source: ClinicalTrials.gov · Data processed: Feb 4, 2026