Neoplasms, Neurodegenerative Diseases, Terminal Illness
Conditions
Brief summary
In Paris, France, home hospice care for terminally ill patients is organized by four palliative care networks. These networks are responsible for information sharing and coordination of all health care professionals working with the patient. Two different systems are in place to ensure continuity of care outside working hours, in such a setting. In the first system, palliative care specialists from the network are reachable over the phone 24/7 by the patient or its caregivers, whenever needed. In the second system, medical information about the patient, regularly updated by the network's medical team, is available to professionals via a secure website, so that in case the patient requires an urgent medical home visit outside working hours, the visiting physician has access to accurate information. The study's goal is to compare patient's and caregiver's satisfaction between these two systems of continuity of care. For that purpose, patients will be taken care of as usual by every palliative care network. In every instance where the patient or caregivers have reached out for medical help through the network's continuity of care system, the patient or caregiver will be called 5 days later by the investigation team to go through a satisfaction questionnaire (Likert scales)
Interventions
None listed
Sponsors
Fondation Ophtalmologique Adolphe de Rothschild
Study design
Observational model
CASE_ONLY
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Patient has a disease with fatal prognosis and requires palliative care * Patient lives in Paris, France * Patient benefits from home hospice care through one of the four official Paris palliative care networks
Exclusion criteria
* Pregnant women * Breastfeeding womed * Altered cognitive function with a Mini Mental Status below 20 * Patient not able to communicate or not speaking French * Patient legally not capable of giving informed consent
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Satisfaction about the response given by the network's continuity of care system | between the first and tenth day after the patient or caregiver activated the network's continuity of care system | Patient's (or caregiver's) satisfaction about the response given by the network's continuity of care system, after the patient or caregiver activated this system at night time or during week-ends or bank holliday, as measured on a 4-level Likert scale (verbal questionnaire by phone call) |
Countries
France
Outcome results
None listed