Anxiety, Depression, Quality of Life, Stress
Conditions
Keywords
Hospice, Palliative Care, Integrative Medicine, Music Therapy, Inpatient, Caregiver
Brief summary
This is a study to assess the feasibility and acceptability of implementing a music therapy intervention for caregivers of hospitalized patients who are referred to inpatient hospice.
Detailed description
Caregivers are at high risk for stress, poor quality of life (QOL), and burnout. As a patient nears death, common themes for caregivers include anxiety and emotional distress from impending death, anticipatory grief, and acceptance of loss, which negatively impact the caregiver QOL. Investigators propose to conduct a pilot project to investigate music therapy impact on caregiver distress for caregivers of imminently dying hospitalized patients referred to hospice. Upon enrollment, caregivers will be provided a music therapy intervention with legacy-building components, and will be asked to complete 3 brief questionnaires on distress and quality of life before and after the music therapy to assess their response to the intervention. The overall aim is to reduce caregiver distress and optimize QOL.
Interventions
OTHERMusic Therapy
Music therapy is tailored to subject preference. Examples are active music-making, supportive listening, and includes opportunities for legacy building to decrease caregiver distress and promote self-care.
Sponsors
Mayo Clinic
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Intervention model description
This study plans to enroll 20 subjects. All subjects will receive 1 music therapy intervention lasting approximately 1 hour.
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
1. Age \> 18 years 2. Self-identified caregiver 3. English-speaking
Exclusion criteria
1\. Unable to provide consent
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Pearlin role overload measure (ROM) | Baseline to 6 months | 4-item self-administered measure of caregiver stress |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Linear Analogue Self-Assessment (LASA) | Baseline to 6 months | 10-item self-report of general measures of quality of life (QOL) |
| Patient Health Questionnaire for Depression and Anxiety (PHQ-4) | Baseline to 6 months | 4-item self-administered screening tool that combined two validated two-item screeners for depression and anxiety |
| Music Therapy Program Survey | Up to 72 hours after intervention | Survey to assess satisfaction regarding the therapy service provided |
Countries
United States
Outcome results
None listed