Congenital Heart Disease, Pediatric Congenital Heart Disease, Transition
Conditions
Brief summary
The study looks to learn more about the helpfulness of web-based transition education and its effect on transition readiness and health service utilization in the adolescent and young adult congenital heart disease population.
Interventions
BEHAVIORALWeb-based Educational Intervention
A web-based educational tool, created for patients with congenital heart disease, will be given to patients using an ipad. This additional educational tool will be used with the standard of care visit with provider.
Sponsors
University of Nebraska
University of Michigan
Study design
Allocation
RANDOMIZED
Intervention model
PARALLEL
Primary purpose
OTHER
Masking
NONE
Eligibility
Sex/Gender
ALL
Age
13 Years to 25 Years
Healthy volunteers
No
Inclusion criteria
* Diagnosed with congenital heart disease * Ages 13-25 * Routine outpatient cardiology follow-up visit
Exclusion criteria
* New patients to cardiology clinic * Patients being evaluated for an acute medical problem * Patients who do not speak English * Severe neurocognitive impairment that precludes ability to complete the questionnaire
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Change in transition readiness score, as measured by transition readiness survey | baseline, 12 months | The transition readiness survey is used to measure a participant's self-reported knowledge about their health and readiness to take charge of their healthcare. Each item is scored from 1 to 5, where 1 means No, I do not know how and 5 means Yes, I always do this when I need to. The overall score is determined by calculating the sum of all questions on a 100 point scale. A higher score indicates greater readiness for transition. |
Countries
United States
Outcome results
None listed