Cerebral Palsy, Parenting, Physical Activity, Physical Disability, Quality of Life, Sleep Disorder
Conditions
Keywords
cerebral palsy, Health-Related Quality Of Life, Physical Activity
Brief summary
The primary aim of this study is assessing physical activity, the quality of sleep and health related quality of life in children with cerebral palsy, and parenting stress of caregivers of the children with cerebral palsy in Korea.
Detailed description
Monitor the physical activity, health related quality of life, parenting stress according to GMFCS level in children with cerebral palsy in Korea. 1. Physical activity and quality of sleep are monitored by wearing Actigraph for a week. 2. Health related quality of life is checked by parents withChild Health Questionnaire Parent Form 50 (CHQ-PF50). 3. Parenting stress is monitored with Korean Parenting Stress Index-Short Form (K-PSI-SF) by parents.
Interventions
OTHERinterventional study
The participants wear a monitoring equipment (Actigraph) for a week. And parents do Child Health Questionnaire Parent Form 50 (CHQ-PF50), and Korean Parenting Stress Index-Short Form (K-PSI-SF)
Sponsors
The Catholic University of Korea
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Intervention model description
Non-randomized single group Accelerometer was weared for a week to check physical activity and sleep in children with cerebral palsy.
Eligibility
Sex/Gender
ALL
Age
4 Years to 19 Years
Healthy volunteers
No
Inclusion criteria
* Children with cerebral palsy, 4-19 years old
Exclusion criteria
* Patients with progressive brain lesions, tumors, leukodystrophies, etc. * Children with mitochondrial myopathy * Some diseases that are known to progress, Rett syndrome, etc.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Physical activity | Monitored for a week | vector magnitude, steps, percentage of sedentary time monitored with Actigraph |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| health related quality of life | Once (cross sectional) | Checked with Child Health Questionnaire Parent Form 50 (CHQ-PF50) by parents |
| Parenting stress | Once (cross sectional) | Checked with Korean Parenting Stress Index-Short Form (K-PSI-SF) by parents |
| Quality of sleep | Monitored for a week | Sleep efficiency, number of awakening monitored with Actigraph |
Countries
South Korea
Outcome results
None listed