Systemic Sclerosis
Conditions
Brief summary
The primary objective is to assess the burden of aesthetic complication in systemic sclerosis. Systemic sclerosis is associated with changes in skin aspect which can impact the appearance. Aesthetic burden will be assessed through several scales and compared to a control group of health subjects.
Interventions
OTHERappearance scales
appearance scales : AVS; ASWAP; DAS 59
Sponsors
University Hospital, Lille
Study design
Observational model
CASE_CONTROL
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to 65 Years
Healthy volunteers
No
Inclusion criteria
* systemic sclerosis according to ACR-EULAR 2013
Exclusion criteria
* non French native * aesthetic sequel from other conditions
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Visual scale for aesthetic burden | Baseline | Visual scale for aesthetic burden from 0 to 10 |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Satisfaction with Appearance Scale (SWAP) | Baseline | The SWAP measures body image dissatisfaction in persons with visible disfigurement |
| Derriford Appearance Scale-59 (DAS) | Baseline | The Derriford Appearance Scales measure the spectrum of psychological distress and dysfunction that is characteristic of disfigurements, deformities and aesthetic problems of appearance. |
| Multidimensional Body self Relations Questionnaire (MBSRQ) | Baseline | The Multidimensional Body-Self Relations Questionnaire (MBSRQ) is a 69-item self-report inventory for the assessment of self-attitudinal aspects of the body-image construct. |
Countries
France
Outcome results
None listed