Evaluation of Knowledge Among Adolescents With Sickle Cell Disease.

Evaluation of Knowledge and Practices About Contraception, Sexuality and Transmission Among Adolescents With Sickle Cell Disease.

Status

Completed

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT03235011

Acronym

SEXODREP

Enrollment

Registered

2017-08-01

Start date

2017-03-10

Completion date

2018-01-31

Last updated

2019-02-06

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Sickle Cell Disease

Brief summary

Evaluation of knowledge about contraception in sickle cell adolescents.

Detailed description

Sickle cell teenagers receive regular hospital medical care. Adolescence is the time when the pathophysiology of the disease is re-explained and when questions around puberty (possibly delayed), sexuality and contraception are discussed. Sickle cell disease, like any chronic disease, can have repercussion on the development and behavior of young patients. Knowledge and understanding of young patients with sickle cell disease around these issues may be insufficient.

Interventions

None listed

Study design

Observational model

COHORT

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Age

14 Years to 19 Years

Healthy volunteers

Inclusion criteria

* Patients with sickle cell disease followed at the CHIC * Aged 14 to 19 * Both sexes

Exclusion criteria

* Neurological disorders that can impede understanding of the questionnaire. * Refusal to participate. * Not affiliated to social security.

Design outcomes

Primary

Measure	Time frame	Description
Score value of the questionnaire on general knowledge on contraception	at inclusion	questionnaire on general knowledge on contraception rated by 4 questions

Secondary

Measure	Time frame
Score value of the questionnaire on the transmission of the disease knowledge	at inclusion
Score value of the questionnaire on specific knowledge about the impact of sickle cell disease on the course of puberty	at inclusion
Score value of the questionnaire onspecific knowledge about the impact of sickle cell disease on the course of sexuality	at inclusion
Score value of the questionnaire on specific knowledge on the transmission of the disease	at inclusion
gender of the patient with sickle cell disease	at inclusion
number of hospitalizations of the patient with sickle cell disease	at inclusion
age of the patient with sickle cell disease	at inclusion

Countries

France

Outcome results