Evaluation of Academic and Professional Trajectories of Narcoleptic Patients

Status

Completed

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT03173378

Acronym

NARCOWORK

Enrollment

149

Registered

2017-06-01

Start date

2017-10-03

Completion date

2018-07-10

Last updated

2018-11-28

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Narcolepsy

Brief summary

Narcolepsy is a chronic, disabling condition characterized by excessive daytime sleepiness and, in some patients, falls in muscle tone related to emotions (cataplexies). It often begins in childhood or in young adults. Symptoms of narcolepsy are responsible for an important handicap in everyday life, and are often misunderstood by the family and professional environment. In addition, many comorbidities are associated with narcolepsy, such as depression, anxiety, or obesity. Few studies have examined the impact of narcolepsy on patients' educational background, socio-professional integration, and quality of life. In particular, the factors of professional handicap related to the characteristics of the disease and the determinants of the insertion of the patients remain poorly known. As a better understanding of these determinants could help to inform patients and guide them in their choices, NARCOWORK study aims at evaluating the academic and professional trajectories of a wide population of narcoleptic patients.

Interventions

OTHERQuestionnaires

Participants will have to complete questionnaires to compare the distribution of occupational situations in narcoleptic patients and matched non-narcoleptic subjects (controls)

Study design

Observational model

CASE_CONTROL

Time perspective

CROSS_SECTIONAL

Eligibility

Sex/Gender

ALL

Age

18 Years to No maximum

Healthy volunteers

Yes

Inclusion criteria

Group Narcoleptic Patients: * Type 1 or Type 2 narcolepsy * \> 18 years * Usually followed at the Lyon Sleep Medicine Center Group Control: * At least one member of each family of cases (siblings, cousins ...) * \> 18 years and of the same age as the case if possible (+/- 5 years) * No narcolepsy

Exclusion criteria

* uncertain diagnosis (for the Narcoleptic Patients Group) * poor knowledge of the French language * Refusal to participate

Design outcomes

Primary

Measure	Time frame	Description
Occupational situations	30 to 45 minutes	Participants will have to complete questionnaires to compare the distribution of occupational situations subjects (worker, unemployed, student, retired, housewife) in narcoleptic patients and matched non-narcoleptic subjects (controls)

Countries

France

Outcome results

None listed

Source: ClinicalTrials.gov · Data processed: Mar 2, 2026