Cancer Patients Undergoing Stem Cell Transplantation (RCT of ACP for Transplant)
Conditions
Brief summary
We aim to examine the effect of an online advance directive on decisional conflict and quality of life in patients undergoing stem cell transplant. We also aim to assess the effect of palliative care at the time of a sentinel event on quality of life.
Interventions
OTHERSurveys
Instruments will be administered via the online RedCAP platform. The survey instruments will include a Decision Conflict Scale (DCS), the McGill Quality of Life (MQoL), the Human Connection (THC), and a general demographics questionnaire. Patients will have the opportunity to complete the instruments via a research iPad while in clinic or via a survey link emailed to their private email account.
Sponsors
Abramson Cancer Center at Penn Medicine
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
The inclusion criteria for Phase I (primary objective) are as follows: * Age ≥ 18 years * Hematologic malignancy diagnosis including any subset of myeloma, lymphoma, leukemia, or myelodysplastic syndrome * Currently scheduled for autologous or allogeneic transplant at the Hospital of the University of Pennsylvania The inclusion criteria for Phase II (secondary objective) are as follows: * Age ≥ 18 years * Hematologic malignancy diagnosis including any subset of lymphoma, leukemia, or myelodysplastic syndrome * Received an autologous or allogeneic stem cell transplant at the Hospital of the University of Pennsylvania and experienced a sentinel event of either 1) disease relapse,2) severe (Grade III or IV) graft-versus-host disease, or 3) unplanned hospital admission with length of stay greater than 72 hours.
Exclusion criteria
The
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Number of surveys completed | 2 years |
Outcome results
None listed