Pediatric Cancer
Conditions
Keywords
Video Narrative
Brief summary
The purpose of this study is to learn more about the content of and benefits of making video testimonials in adolescents with cancer.
Detailed description
The current research aims to: A. enlist teens with cancer to produce video narratives about their experiences with their illness B. explicitly characterize and investigate the videos' content and C. determine what aspects of the production were helpful to the teen making them and predicted to be helpful to those watching them.
Interventions
BEHAVIORALDelis-Kaplan Executive Function System (D-KEFS) Verbal Fluency Test
The D-KEFS Verbal Fluency Test consists of three subtests, which take approximately 6 minutes to complete
BEHAVIORALVideo narrative
create a 10-15 minute video intervention about teen experiences after being diagnosed with cancer
BEHAVIORALPedsQL
A generic 23-item Health Related Quality of Life measure initially developed using pediatric cancer patients
BEHAVIORALTen Item Personality Inventory
The TIPI consists of ten items and measures personality based the subject's agreement of descriptions of themselves taken from the Big-5 model of personality
BEHAVIORALThe Cognitive Log
The Cog-Log is a 5-10 minute assessment designed to measure basic cognitive functioning and orientation
Sponsors
MetroHealth Medical Center
Palo Alto University
Case Comprehensive Cancer Center
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Eligibility
Sex/Gender
ALL
Age
11 Years to 18 Years
Healthy volunteers
No
Inclusion criteria
* Diagnosed with cancer * Patients receiving cancer treatment for the first time * Can complete study before high school graduation * Must be able to read and understand English
Exclusion criteria
* Participants cannot have been treated for other chronic illnesses prior to cancer diagnosis * Patients with cognitive and.or verbal capacities impaired to the point where they cannot consent or assent for themselves * Patients who cannot communicate narratives clearly due to cognitive and/or verbal impairments
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| linear regression of pediatric quality of life (PedsQL), TIPI, and coded themes from video narratives on coherence, subjectivity and redemption | at end of intervention - Approximately 60 minutes after enrolling on study | Participants' composite scores of the 10 items that make up the emotional and social domains from the PedsQL, 15 items from the PedsQL cancer module, and the two items on the TIPI that measure Extroversion will positively covary with the resilient qualities of their narrative as measured by levels of narrative coherence, subjectivity, and redemption |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| linear regression of coded resilient qualities of narrative with Post Video Impression Questionnaire | at end of intervention - Approximately 60 minutes after enrolling on study | Resilient qualities of the narrative, as measured by levels of narrative coherence, subjectivity, and redemption, will predict the sum of 16 select items on the Post Video Impressions Questionnaire identifying positive impact associated with producing the narrative |
| linear regression of impact experienced from making the video narrative with summed scores of participants willingness to post online | at end of intervention - Approximately 60 minutes after enrolling on study | The sum of the 16 item composite scale measuring impact experienced from making the testimonial video, on the Post Video Impressions Questionnaire, will positively predict the summed scores of two items measuring participants' willingness to post the video online |
| linear regression of perceived impact with summed scores of participants willingness to post the video online | at end of intervention - Approximately 60 minutes after enrolling on study | The sum of the 7 item composite scale measuring the perceived impact on others who watch the video, on the Post Video Impressions Questionnaire, will positively predict the summed scores of two items measuring participants' willingness to post the video online |
Outcome results
None listed