Idiopathic Thrombocytopenic Purpura
Conditions
Keywords
Idiopathic Thrombocytopenic Purpura
Brief summary
Assessment of quality of life of patient with chronic idiopathic thrombocytopenic purpura according to the type of treatment
Interventions
completion of questionnaire for patient and parent
Sponsors
University Hospital, Angers
Study design
Observational model
OTHER
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
1 Years to 17 Years
Healthy volunteers
No
Inclusion criteria
* children with Idiopathic thrombocytopenic purpura * aged between 1 and 17 year * Idiopathic thrombocytopenic purpura persistent at 12 months * obtention of informed consent
Exclusion criteria
* Persistant/acute Idiopathic thrombocytopenic purpura * concomittant chronic disease, stabilized or not * Concomittant disease with life expectancy \< 1 year * Person who have not belong to a social security scheme * Secondary Idiopathic thrombocytopenic purpura
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| quality of life score according to type of treatment | at inclusion visit | quality of life score according to type of treatment |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| number of hospitalisation and consults per year | at inclusion visit | number of hospitalisation and consults per year |
| description of general quality of life | at inclusion visit | use ped'sQL general |
| description of awareness of parent and patient about Idiopathic thrombocytopenic purpura | at inclusion visit | use Kid's ITO Tools questionnaire |
Countries
France
Contacts
Primary Contactmarianne roumy
Outcome results
None listed