Caregivers
Conditions
Keywords
Caregivers, Chronic Pain
Brief summary
The Understanding Needs Project is designed to gain an understanding of the needs of informal caregivers. Researchers have designed a survey to highlight activities of daily living involved in the caregiving role, pain related to caregiver, and potential services desired. The initial phase of the study will consist of a focus group of informal caregivers to discuss current needs. The survey will then be refined based on knowledge gained from the focus group, and feedback from expert researchers. The refined survey will then be disseminated to caregivers throughout the country. Please click on the following anonymous link to participate: https://chhscolostate.co1.qualtrics.com/jfe/form/SV\_54j83BQSItMuoUB
Detailed description
The Understanding Needs Project highlights the needs of informal caregivers. An informal caregiver is defined as a person who regularly provides unpaid care to another adult. The survey will ask about pain intensity, pain interference, and relation of pain to the caregiving role. The survey will also address which activities the caregiver assists with, and activities now lacking since becoming a caregiver. One focus group will be completed to refine the contents of the survey prior to dissemination. The results will be analyzed by an occupational therapist, with a focus on how pain may connect to assistance with daily living activities provided to the care recipient. The needs of caregivers within the community will be compiled to inform future involvement in remediation of needs.
Interventions
OTHERUnderstanding Needs Survey
2-hour Focus Group Mailed or E-mailed Survey
Sponsors
Colorado State University
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Intervention model description
A single focus group. A single group will be analyzed based on survey results
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
* At least 18 years old * Informal caregivers (unpaid) * have been a caregiver for \> 6 months * provide at least 8 hours of care/week * able to read english
Exclusion criteria
* Less than 18 years old * paid caregivers * not able to read english * Caregiver or care recipient has a terminal diagnosis with a life expectancy of less than one year
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| PEG: Three Item Pain Measure | Self-report, up to one year for analyses when all surveys are returned | A self-rating of pain intensity, pain interference in enjoyment of life, and pain interference in general activity |
Countries
United States
Outcome results
None listed