Pulmonary Fibrosis
Conditions
Brief summary
The purpose of the present study is to advance in the knowledge of quality of life in patients with ILD by translating a ILD quality of life questionnaire. There are no specific tools validated in Spanish to evaluate the quality of life in patients with ILD, although these measures are useful for an comprensive evaluation of these patients. Patients with ILD have a significant impact on their health. If we improve our Knowledge of the different domains affected by the disease, and not only in the pathophysiological ones, we will be able to develop tools to improve their management.
Interventions
OTHERQuality of life questionnaire
Measurement of quality of life
Sponsors
Fundació Institut de Recerca de l'Hospital de la Santa Creu i Sant Pau
Study design
Observational model
CASE_ONLY
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
1. Subjects older than 18 years. 2. Diagnosis of ILD, established according to the consensus documents of the ATS and ERS \[1,2\]. 3. Acceptance of the patient to participate in the study by signing the informed consent after having discussed with the researchers the objectives, risks and potential benefits.
Exclusion criteria
1. Another chronic respiratory disease other than EPID. 2. Psychiatric disorder or limitation of collaboration (including language, socio-cultural problem, etc.).
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Validation of a specific quality of life questionnaire for patients with ILD | 6 months |
Countries
Spain
Outcome results
None listed