Epilepsy
Conditions
Brief summary
This study will measure the engagement of people with epilepsy in a mobile phone based messaging platform as well as understand if there is an impact on their self-management
Detailed description
The primary purpose of this study is to assess a person with epilepsy's level of usage of a mobile messaging application for peer support. The secondary purpose is to understand what characteristics of their group drive different levels of usage and improvements in self-management. Participants can participate as much or little as they want for a minimum of six weeks. Participants will complete an initial and a final questionnaire.
Interventions
BEHAVIORALFacilitator support and education
Group engaged with facilitator support and education
Sponsors
Royal Free Hospital NHS Foundation Trust
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Eligibility
Sex/Gender
ALL
Age
18 Years to 65 Years
Healthy volunteers
No
Inclusion criteria
* Age, diagnosis of epilepsy, have access to a smartphone capable of running messaging application
Exclusion criteria
* A diagnosis of learning disability/difficulty, significant mental health conditions; those in care, bereaved, or prisoners. Any other vulnerable individuals (individuals unable to protect themselves against significant harm or exploitation)
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Engagement | 6 weeks | Average participant number of posts over time frame assessed by tracking number of participant entries |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Epilepsy self-management | Change in Baseline to 6 weeks | Patient activation measure based on self-reported questionnaire |
| Epilepsy medication adherence | Change in Baseline to 6 weeks | Medication adherence based on self-reported questionnaire |
| Epilepsy quality of life | Change in Baseline to 6 weeks | Quality of life in epilepsy metric based on self-reported questionnaire |
Countries
United Kingdom
Outcome results
None listed