Cancer, Caregivers
Conditions
Brief summary
This study will look at caregiver burden and the coping behavior of caregivers of patients with cancer. Through this study, the investigators will identify the relationship between cognitive dysfunction (measured as a proxy rating by the caregiver), resilience, social support, cognitive appraisal, coping behavior, and caregiver burden, anxiety, and depression among family caregivers of patients with cancer.
Detailed description
The goal of this study is to explore caregiver burden and the coping behavior of caregivers of patients with cancer. It has been documented that non-professional caregivers and long-term care providers to patients with cancer receive little preparation, information, or support to perform their vital role. Through this study, the investigators will identify the relationship between cognitive dysfunction, resilience, social support, cognitive appraisal, coping behavior, and caregiver burden, anxiety, and depression among family caregivers of patients with cancer. The findings of this study will direct future intervention studies to reduce caregiver burden and improve outcomes for the many individuals caring for family members with cancer.
Interventions
OTHERQuestionnaire
Participants will complete paper and pencil or electronic questionnaires at the cancer center or in the privacy of their own homes.
Sponsors
Saint John's Cancer Institute
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
* Age ≥ 18 years * Self-identified primary caregiver of patients with cancer * Co-residence with the patient * Providing a minimum of 4 hours of direct care for at least 3 days per week * Able to speak, read, and understand English * Willing to participate in completion of surveys
Exclusion criteria
* Professional or paid caregivers
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Changes in Caregiver Burden Score [Caregiver Reaction Assessment (CRA)] | 1 year | Relation between caregiver burden subscale scores and caregiver resilience, social support, and coping |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Changes in Anxiety and Depression Score [Hospital Anxiety and Depression Scale (HADS)] | 1 year | Relation between caregiver anxiety and depression score and caregiver resilience, social support, and coping |
Countries
United States
Outcome results
None listed