Congenital Heart Disease
Conditions
Keywords
MacNew questionnaire, Quality of life
Brief summary
Adults with a congenital heart disease, having undergone a surgical intervention or a re-do surgery in adulthood, are a growing group of subjects in the general population. This increase is explained by improved medical and surgical techniques, with a better survival rate as outcome. There is nowadays a growing interest in the quality of life of this group of subjects. However, studies give contradictory results. This can be explained on one hand by the vast majority of pathologies within this population, and on the other hand by the absence of a cardio-specific tool for quality of life measurement. The MacNew questionnaire is cardio-specific. It allows an evaluation of the quality of life based on the exploration of three domains: physical, emotional and social. The aim of this study is: * to evaluate the quality of life of these patients, by using the MacNew questionnaire * to explore the needs in terms of prevention, treatment and multi-disciplinary follow-up * to assess the mortality within this group of patients.
Interventions
OTHERMacNew questionnaire
Patients will be asked to fill in the MacNew questionnaire on quality of life (phone contact).
Sponsors
Pierre Wauthy
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
OTHER
Masking
NONE
Eligibility
Sex/Gender
ALL
Age
16 Years to No maximum
Healthy volunteers
No
Inclusion criteria
Patients having had surgery in adulthood for a congenital heart disease, at the Brugmann University Hospital. The group consists in patients aged 16 years or older, having had surgery between 01/01/1998 and 31/12/2015
Exclusion criteria
None
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| MacNew questionnaire | 30 minutes | Quality of life assessment |
Countries
Belgium
Outcome results
None listed