Scoliosis; Adolescence
Conditions
Brief summary
This is a survey to help understand the influences related to the decision for Adolescent Idiopathic Scoliosis treatment (observation vs. bracing vs. surgery). The investigator then plans to create a decision aid to help families when making a decision about the treatment choice being presented to them.
Detailed description
This survey is designed to help understand the factors that families consider to help make treatment decisions related to Adolescent Idiopathic Scoliosis (AIS). The surveys will then be used to help create a shared decision making tool to help families better understand the treatment options and optimize clinical conversations surrounding AIS treatment.
Interventions
OTHERSurvey for Patients Treated for Scoliosis and ther Families
Your Scoliosis Journey: A Survey for Patients Treated for Scoliosis and ther Families
Sponsors
Mayo Clinic
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
13 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Subject (and/or parent of subject) who has previously been treated for Adolescent Idiopathic Scoliosis (AIS)
Exclusion criteria
* Age less than or equal to 12 years
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Number of subjects who completed the survey | Baseline, approximately 3 years | Number of subjects who completed the survey |
Countries
United States
Contacts
Primary ContactDamian Paulson
Outcome results
None listed