Neuromuscular Diseases
Conditions
Keywords
Solution focused coaching, Self determination
Brief summary
The purpose of this study is to implement Solution Focused Coaching in pediatric rehabilitation (SFC-peds) within the multidisciplinary neuromuscular clinic at Holland Bloorview Kids Rehabilitation Hospital and evaluate its effect on children's ability to set and attain personally meaningful goals. A secondary goal is to determine the impact of SFC-peds on self-determination in children with neuromuscular conditions. This study aims to compare two methods of SCF-peds delivery, a single coaching session vs. intensive coaching (5 sessions) on goal attainment. This study will also help researchers and clinicians understand the types of goals that are set by children with neuromuscular conditions. Lastly, this study is going to explore with the participants their perception of the feasibility of using this methodology within a clinical context.
Detailed description
Nationally, standards of care have been published for paediatric neuromuscular (NM) conditions to optimize care, improve quality of life and increase life span. Children with NM conditions are followed in regional multidisciplinary clinics in Ontario and across Canada. At each visit they can be seen by 8 health care providers each focusing on and making recommendations for the different aspects of their care. Currently, there are no evidenced based interventions for children with NM conditions evaluating the ability of children to set and attain their care goals and/or other personally meaningful goals. Self-determination is defined as the ability to use skills, knowledge and beliefs that enable a person to engage in goal directed, self-regulated, autonomous behavior. The development of self-determination is a process that begins in childhood. Solution Focused Coaching (SFC) is a strengths- based, client-centered approach to service delivery that supports clients to build on their existing capacity to move closer to meaningful goals. This study will evaluate the impact of SFC on goal setting, achievement and self determination in children with NM conditions.
Interventions
BEHAVIORALSolution Focused Coaching
SFC is an approach that uses strategic questioning to help the client envision what they would like to be different and how they will take action towards achieving their goals.
BEHAVIORALIntensive Solution Focused Coaching
Intensive SFC is an approach that uses strategic questioning to help the client envision what they would like to be different and how they will take action towards achieving their goals.
Sponsors
AHSC AFP Innovation Fund- Ontario Government
Holland Bloorview Kids Rehabilitation Hospital
Study design
Allocation
RANDOMIZED
Intervention model
PARALLEL
Primary purpose
TREATMENT
Masking
NONE
Eligibility
Sex/Gender
ALL
Age
10 Years to 18 Years
Healthy volunteers
No
Inclusion criteria
* child has a primary NM diagnosis * child ages 10-18 years * child able to converse orally in English * child has a willingness to engage in the coaching intervention * child is aware that they have a neuromuscular condition * child is followed clinically in the Neuromuscular Clinic at Holland Bloorview Kids Rehabilitation Hospital at 4-6 month intervals * child has internet access at home and a device to connect to the internet with a camera * child is able to demonstrate capacity to consent * parent is able to read and write in English
Exclusion criteria
-child has a moderate to severe intellectual disability
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Change on Canadian Occupational Performance Measure (COPM) | Week 0 and Week 14 |
| Change on Goal Attainment Scaling (GAS) | Week 0 and Week 14 |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| American Research Council's Self Determination Scale (ARC SDS) | Week 0 and Week 14 | — |
| Solution-Focused Fidelity Instrument (SFFI) | Weeks: 2, 3, 4, 6, 10 and 14 | Done after each coaching session |
| Thematic Analysis of Interview Questions Exploring Solution Focused Coaching Process | Week 14 | — |
Outcome results
None listed