Cystic Fibrosis
Conditions
Brief summary
Cystic fibrosis is so far a disease whose treatment remains essentially symptomatic care teams perceive the boundaries of a support mainly focused on drug treatments. The patient had no other choice but to learn to live with their disease, the goal is to make every effort so that tames the disease while maintaining high self-esteem that gives meaning to his life, allowing, among other things, a good grip of treatment. Through this research we hope to encourage the integration of art therapy in the course of care of cystic fibrosis patients, from children to adults before and after transplantation, in connection with the patient education and counseling
Interventions
OTHERNon interventional study
First individual interviews will be set up with teenagers of Nantes University Hospital . Then, focus group will be conduct with patients and professionals in Nantes and Foch University Hospital.
Sponsors
Nantes University Hospital
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
13 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
* Cystic fibrosis aged adolescents 13 to 18 years, as part of their monitoring at cystic fibrosis center of Nantes * Adults over 18 years nontransplanted in their follow at cystic fibrosis center/transplantation center of Foch * More than 18 adult transplant as part of their monitoring at cystic fibrosis center/transplantation center Foch * Professional interdisciplinary teams taking care of the cystic fibrosis children center of Nantes, cystic fibrosis center/transplantation center of Foch * Agreeing to participate in research Non Inclusion Criteria: * Patient refusal of adolescent parents to participate in the study * Professional refusal of teams to participate in the study
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Patient responses to the effects of art therapy and music therapy | 1 day | The depth interviews with patients will achieve a thematic and structural analysis of the speech. This will capture the effects of art therapy and music therapy on patients, their point of view. |
Countries
France
Outcome results
None listed