Autism Spectrum Disorders
Conditions
Keywords
telehealth
Brief summary
The purpose of this study is to investigate the efficacy of a 12 week telehealth intervention for families of children with autism spectrum disorders under the age of 6 years on child participation and parent efficacy.
Detailed description
Autism spectrum disorders (ASD) are increasingly being diagnosed in children, creating a pressing need for effective and cost-efficient models of early intervention (EI) services. Many EI systems are struggling to meet the needs of the increasing number of families of children with ASD. In rural areas, there is a shortage of EI therapists, and the distances to reach families results in an inefficient use of professional time and research shows that rural families of children with ASD receive fewer EI services, which has detrimental effects on children's developmental trajectories. If occupational therapy interventions for young children with ASD utilize innovative methods of service delivery in rural areas, investigators can increase the number of families that receive services thereby positively influencing child and family outcomes. Therefore, investigators propose to test the acceptability, cost-effectiveness, and efficacy of a 12 week telehealth intervention for families of young children with ASD.
Interventions
BEHAVIORALOccupational Performance Coaching (OPC)
OPC focuses on increasing positive child-caregiver interactions and child learning opportunities in everyday routines and contexts, which positions families for improved trajectories over time. OPC capitalizes on families' strengths, while supporting caregivers in using their own resources and ideas to advance child function. Caregivers identify goals, while therapists ask reflective questions and make reflective comments, affording caregivers an opportunity to gain a deeper understanding of their own current knowledge and the impact of their strategies on their children's adaptive behavior. Thus, families generate their own solutions and are ultimately responsible for carrying out the intervention and evaluating its effectiveness.
Sponsors
University of Kansas Medical Center
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Eligibility
Sex/Gender
ALL
Age
12 Months to 84 Months
Healthy volunteers
Yes
Inclusion criteria
* Family with a child up to 72 months old with a diagnosis of ASD and primarily spoke English in the home.
Exclusion criteria
* Child has significant visual or hearing impairments or has a known genetic condition associated with autism (e.g., Fragile X Syndrome).
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Parent Sense of Competence Scale | 12 weeks |
Secondary
| Measure | Time frame |
|---|---|
| Canadian Occupational Performance Measure | 12 weeks |
Countries
United States
Outcome results
None listed