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The Life Experience of Young Women (Age 18-38) Who Live With Congenital Heart Disease

The Life Experience of Young Women (Age 18-38) Who Live With Congenital Heart Disease

Status
UNKNOWN
Phases
Unknown
Study type
Observational
Source
ClinicalTrials.gov
Registry ID
NCT02909543
Enrollment
15
Registered
2016-09-21
Start date
2016-09-30
Completion date
2017-10-31
Last updated
2016-09-21

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Women With Congenital Heart Diseases

Brief summary

This research will focus on young women between the ages of 18-38 who underwent a heart operation and their life experiences. This research will focus on these life events and the paradigm of these women being raised as heart sick, and consequently lacking self-esteem (Frigiola, Bull, & Wray, 2014; Hickey et al., 2012). Most qualitative studies focusing on the quality of life compare men and women, completely ignoring women's body image and the experience of womanhood (Hickey et al., 2012; Hövels-Gürich et al., 2007; Sarikouch, et al., 2013). This study aims to focus on women's stories about their life experiences and the influence of surgery(ies) on their daily life using an the qualitative phenomenological approach.

Interventions

OTHERObservation and Interviwe

The research data will be conducted by using a semi structured interview of the participants in the study.

Sponsors

Hillel Yaffe Medical Center
Lead SponsorOTHER_GOV

Study design

Observational model
COHORT
Time perspective
RETROSPECTIVE

Eligibility

Sex/Gender
FEMALE
Age
18 Years to 38 Years
Healthy volunteers
No

Inclusion criteria

* Atrial septal defect or ASD, * Ventricle septal defect or VSD, * Tetralogy of Fallot or TOF * Translocation of great arteries or TGA * underwent heart operation * Hebrew speakers that are able to understand the meanings of the questions and tell their life stories.

Exclusion criteria

* Non Hebrew speakers * Did not underwent heart surgery.

Design outcomes

Primary

MeasureTime frame
Interview about the life experience of young women (age 18-38) who live with congenital heart disease and overwent an open heart operation.1day, at the time of the interview

Countries

Israel

Outcome results

None listed

Source: ClinicalTrials.gov · Data processed: Feb 4, 2026